ArticleJAMIA open2020
Use of patient-generated health data across healthcare settings: implications for health systems.
Article in JAMIA open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
24 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Use of Patient-Generated Health Data From Consumer-Grade Devices by Health Care Professionals in the Clinic: Systematic Review.Journal of medical Internet research · 2024Pooled it
- Integrating Consumer-Grade Wearable Devices and Patient-Generated Health Data into Clinical Care: Perspectives from Healthcare Professionals at a Learning Health System.Journal of general internal medicine · 2026Article
- Barriers and Enablers to Integrating Patient-Generated Health Data in Shared Decision-Making From Health Care Professional and Patient Perspectives: Scoping Review.JMIR mHealth and uHealth · 2026Article
- User-centered design of a patient-generated health data mobile application for primary care visits for older adults with chronic pain.JAMIA open · 2026Article
- Implementation and Evaluation of a Social Networking Service-Based Mobile Patient-Generated Health Data System With Direct Electronic Medical Record Integration: Prospective Observational Study.JMIR medical informatics · 2026Observational
- Supporting Access to Care Through Peripheral Devices and Patient-Generated Health Data: Qualitative Study.Journal of medical Internet research · 2026Article
- The Impact of Patient-Generated Health Data From Mobile Health Technologies on Health Care Management and Clinical Decision-Making: Narrative Scoping Review.Journal of medical Internet research · 2025Article
- Detecting Redundant Health Survey Questions by Using Language-Agnostic Bidirectional Encoder Representations From Transformers Sentence Embedding: Algorithm Development Study.JMIR medical informatics · 2025Article
- A sociotechnical approach to defining clinical responsibilities for patient-generated health data.NPJ digital medicine · 2025Article
- EXpanding Technology-Enabled, Nurse-Delivered Chronic Disease Care (EXTEND): Protocol and Baseline Data for a Randomized Trial.Contemporary clinical trials · 2024Article
- Article
- Citizens' Options When Accessing and Sharing Health Information - An International Survey of IMIA Member Countries.Yearbook of medical informatics · 2024Article
- Patient-Generated Health Data (PGHD): Understanding, Requirements, Challenges, and Existing Techniques for Data Security and Privacy.Journal of personalized medicine · 2024Review
- Clinician Needs for Electronic Health Record Pediatric and Adolescent Weight Management Tools: A Mixed-Methods Study.Applied clinical informatics · 2024Article
- Unleashing the Potential for Patient-Generated Health Data (PGHD).Journal of general internal medicine · 2024Article
- Tracking changes in autonomic function by coupled analysis of wavelet-based dispersion of heart rate variability and gastrointestinal symptom severity in individuals with hypermobile Ehlers-Danlos syndrome.Frontiers in neurology · 2024Article
- Digital Health Equity and Tailored Health Care Service for People With Disability: User-Centered Design and Usability Study.Journal of medical Internet research · 2023Article
- The Association of Learning Health System Practicing Hospitals and other Health Information Interested Hospitals with Patient-Generated Health Data Uptake.AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science · 2023Article
- Validation Parameters of Patient-Generated Data for Digitally Recorded Allergic Rhinitis Symptom and Medication Scores in the @IT.2020 Project: Exploratory Study.JMIR mHealth and uHealth · 2022Article
- Opportunities and Challenges of Integrating Food Practice into Clinical Decision-Making.Applied clinical informatics · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveThe growing prevalence of chronic conditions requiring changes in lifestyle and at-home self-management has increased interest in and need for supplementing clinic visits with data generated by patients outside the clinic. Patient-generated health data (PGHD) support the ability to diagnose and manage chronic conditions, to improve health outcomes, and have the potential to facilitate more "connected health" between patients and their care teams; however, health systems have been slow to adopt PGHD use in clinical care. MATERIALS AND
methodsWe surveyed current and potential users of PGHD to catalog how PGHD is integrated into clinical care at an academic health center. The survey included questions about data type, method of collection, and clinical uses of PGHD. Current users were asked to provide detailed case studies of PGHD use in research and care delivery.
resultsThirty-one respondents completed the survey. Seventeen individuals contributed detailed case studies of PGHD use across diverse areas of care, including behavioral health, metabolic and gastrointestinal conditions, musculoskeletal/progressive functional conditions, cognitive symptoms, and pain management. Sensor devices and mobile technologies were the most commonly reported platforms for collection. Clinicians and researchers involved in PGHD use cited the potential for PGHD to enhance care delivery and outcomes, but also indicated substantial barriers to more widespread PGHD adoption across healthcare systems.
conclusionThe results of our survey illustrate how PGHD is used in targeted areas of one healthcare system and provide meaningful insights that can guide health systems in supporting the widespread use of PGHD in care delivery.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.