ArticleJAMIA open2020
Developing a pediatric pain data repository.
Article in JAMIA open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
8 citing papers in PubMed.
- An Interdisciplinary Young Adult Pain Rehabilitation Program: Initial Outcomes Supporting Effectiveness.The Clinical journal of pain · 2026Observational
- Short-Duration Systemic Lidocaine for the Management of Refractory Chronic Pain in Pediatrics.Children (Basel, Switzerland) · 2025Article
- Interdisciplinary management of paediatric chronic and complex pain: the experience of a specialised outpatient clinic in Italy.European journal of pediatrics · 2025Article
- Pain-Related and Psychosocial Functioning in Gender-Diverse Youth with Chronic Pain Prior to and Following the Start of the COVID-19 Pandemic.Journal of clinical psychology in medical settings · 2025Article
- The Photo- and Phonosensitivity Avoidance Behavior Scales: Evaluating Clinical Utility in Pediatric Primary Chronic Headache.Children (Basel, Switzerland) · 2024Article
- A summary of pain and pain-related variables in the Avon Longitudinal Study of Parents and Children.Wellcome open research · 2024Article
- Aligning with Patients and Families: Exploring Youth and Caregiver Openness to Pediatric Headache Interventions.Children (Basel, Switzerland) · 2022Article
- Initial Adjustment to the COVID-19 Pandemic and the Associated Shutdown in Children and Adolescents With Chronic Pain and Their Families.Frontiers in pain research (Lausanne, Switzerland) · 2021Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The management of pediatric pain typically consists of individualized treatment plans and interventions that have not been systematically evaluated. There is an emerging need to create systems that can support the translation of clinical discoveries, facilitate the assessment of current interventions, and improve the collection of patient-centered data beyond routine clinical information. We present the development of the pediatric pain data repository, a custom-built system developed at Boston Children's Hospital by a multidisciplinary pain treatment service. The Repository employs a web platform to collect standardized patient-reported outcomes and integrates this with electronic medical record data. To date, we have collected information on 2577 patients and anticipate adding approximately 500 new patients per year. Major strengths of the Repository include collection of extensive longitudinal patient-reported outcomes, automated clinical data abstraction, and integration of the system into clinical workflows to support medical decision making.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.