ArticleJAMIA open2020
Citizen science to further precision medicine: from vision to implementation.
Article in JAMIA open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it, 39 citations in OpenAlex.
- Patient and Patient Group Engagement in Cancer Clinical Trials: A Stakeholder Charter.Current oncology (Toronto, Ont.) · 2021Guideline
- Patient Participation in AI for Health Curriculum.Journal of participatory medicine · 2025Article
- Proactive process evaluation of precision medicine platforms: a roadmap.BMJ health & care informatics · 2025Article
- A Holistic Digital Health Framework to Support Health Prevention Strategies in the First 1000 Days.JMIR pediatrics and parenting · 2025Article
- Advancing cancer care through digital access in the USA: a state-of-the-art review of patient portals in oncology.BMJ oncology · 2025Review
- Review
- Citizen Science Studies in Nursing: A Systematic Review.Nursing reports (Pavia, Italy) · 2024Review
- The Digital Therapeutics Real-World Evidence Framework: An Approach for Guiding Evidence-Based Digital Therapeutics Design, Development, Testing, and Monitoring.Journal of medical Internet research · 2024Article
- Article
- The Social Contract for Health and Wellness Data Sharing Needs a Trusted Standardized Consent.Mayo Clinic proceedings. Digital health · 2023Article
- How Participatory Health Informatics Catalyzes One Digital Health.Yearbook of medical informatics · 2023Article
- Article
- Tailored physical activity behavior change interventions: challenges and opportunities.Translational behavioral medicine · 2021Review
- Designing Consumer Health Information Technology to Support Biform and Articulation Work: A Qualitative Study of Diet and Nutrition Management as Patient Work.JMIR human factors · 2021Article
- Exploring perceptions of healthcare technologies enabled by artificial intelligence: an online, scenario-based survey.BMC medical informatics and decision making · 2021Article
- Citizen engagement initiatives in precision health in the European Union member states: a scoping review.BMJ open · 2021Article
- Combining the Digital, Social and Physical Layer to Create Age-Friendly Cities and Communities.International journal of environmental research and public health · 2021Article
- Patients Are Knowledge Workers in the Clinical Information Space.Applied clinical informatics · 2021Article
- Precision Health: The Role of the Social and Behavioral Sciences in Advancing the Vision.Annals of behavioral medicine : a publication of the Society of Behavioral Medicine · 2020Article
- Human-Computer Interaction, Ethics, and Biomedical Informatics.Yearbook of medical informatics · 2020Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
12 authors at 12 institutions in 1 country.
Funding
Abstract
The active involvement of citizen scientists in setting research agendas, partnering with academic investigators to conduct research, analyzing and disseminating results, and implementing learnings from research can improve both processes and outcomes. Adopting a citizen science approach to the practice of precision medicine in clinical care and research will require healthcare providers, researchers, and institutions to address a number of technical, organizational, and citizen scientist collaboration issues. Some changes can be made with relative ease, while others will necessitate cultural shifts, redistribution of power, recommitment to shared goals, and improved communication. This perspective, based on a workshop held at the 2018 AMIA Annual Symposium, identifies current barriers and needed changes to facilitate broad adoption of a citizen science-based approach in healthcare.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.