Evidence map›Paper›PMID 32606070›Full record

ArticleOpen heart2020

Research priorities in advanced heart failure: James Lind alliance priority setting partnership.

Clare J Taylor, Alyson L Huntley, John Burden, Amy Gadoud, Toto Gronlund, Nicholas Robert Jones, Eleanor Wicks, Sara McKelvie, Kit Byatt, Richard Lehman and 6 more

Abstract readConsensus Statement
PubMed Full text at PMC Publisher
In one paragraph

Article in Open heart, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
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  5. Research priorities for faecal incontinence in adults: A James Lind Alliance priority setting partnership.Colorectal disease : the official journal of the Association of Coloproctology of Great Britain and Ireland · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Clare J TaylorNuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, Oxfordshire, UK.ORCID 0000-0001-8926-2581
Alyson L HuntleyBristol Medical School, University of Bristol Faculty of Health Sciences, Bristol, UK.
John BurdenPatient Collaborator, Hertfordshire, UK.
Amy GadoudLancaster Medical School, Lancaster University, Lancaster, Lancashire, UK.
Toto GronlundJames Lind Alliance, University of Southampton, Southampton, UK.
Nicholas Robert JonesPrimary Care Health Sciences, University of Oxford Department of Primary Care Health Sciences, Oxford, UK.ORCID 0000-0002-0352-3785
Eleanor WicksRadcliffe Department of Medicine, University of Oxford, Oxford, Oxfordshire, UK.
Sara McKelvieEmergency Multidisciplinary Unit, Oxford Health NHS Foundation Trust, Oxford, UK.
Kit ByattRetired, Hereford, UK.
Richard LehmanInstitute of Applied Health Research, University of Birmingham, Birmingham, Birmingham, UK.
Anna KingFaculty of Medicine and Dentistry, University of Bristol, Bristol, UK.
Bev MumfordCommunity Heart Failure Service, Bristol Community Health CIC, Bristol, UK.
Gene FederBristol Medical School, University of Bristol Faculty of Health Sciences, Bristol, UK.
Jonathan MantDepartment of Public Health and Primary Care, University of Cambridge School of Clinical Medicine, Cambridge, Cambridgeshire, UK.
Richard HobbsDivision of Public Health and Primary Health Care, University of Oxford, Oxford, Oxfordshire, UK.
Rachel JohnsonPopulation Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK epraj@bristol.ac.uk.ORCID 0000-0003-0266-3433

Funding

Department of Health DRF-2013-06-034
6 · The paper itself

Abstract

objectiveTo determine research priorities in advanced heart failure (HF) for patients, carers and healthcare professionals.

methodsPriority setting partnership using the systematic James Lind Alliance method for ranking and setting research priorities. An initial open survey of patients, carers and healthcare professionals identified respondents' questions, which were categorised to produce a list of summary research questions; questions already answered in existing literature were removed. In a second survey of patients, carers and healthcare professionals, respondents ranked the summary research questions in order of priority. The top 25 unanswered research priorities were then considered at a face-to-face workshop using nominal group technique to agree on a 'top 10'.

results192 respondents submitted 489 responses each containing one or more research uncertainty. Out-of-scope questions (35) were removed, and collating the responses produced 80 summary questions. Questions already answered in the literature (15) were removed. In the second survey, 65 questions were ranked by 128 respondents. The top 10 priorities were developed at a consensus meeting of stakeholders and included a focus on quality of life, psychological support, the impact on carers, role of the charity sector and managing prognostic uncertainty. Ranked priorities by physicians and patients were remarkably divergent.

conclusionsEngaging stakeholders in setting research priorities led to a novel set of research questions that might not have otherwise been considered. These priorities can be used by researchers and funders to direct future research towards the areas which matter most to people living with advanced HF.

Indexed as

Health PrioritiesResearch DesignStakeholder ParticipationAdultAgedAged, 80 and overCaregiversConsensusCooperative BehaviorFemaleHealth PersonnelHeart FailureHumansMaleMiddle AgedPatientsEBMheart failureheart failure treatmentquality of care and outcomes

Identifiers

PMID32606070
PMCPMC7328807

What OpenQuestion holds

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LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.