ArticleBMC medical ethics2020
Relational autonomy in end-of-life care ethics: a contextualized approach to real-life complexities.
Article in BMC medical ethics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07012265 (An Investigation of the Factors Related to Attitudes Towards Hospice and Palliative Care Among the Bunun Tribe in Taiwan), which is not on this map. Cited by 60 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
An Investigation of the Factors Related to Attitudes Towards Hospice and Palliative Care Among the Bunun Tribe in Taiwan: A Case Study of the Lona Village in Nantou
Who cites it
60 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Family members' experiences of palliative sedation -a systematic integrative review.BMC palliative care · 2026Pooled it
- The role of acculturation in the process of advance care planning among Chinese immigrants: A narrative systematic review.Palliative medicine · 2023Pooled it
- Caregiving and Shared Decision Making in Breast and Prostate Cancer Patients: A Systematic Review.Current oncology (Toronto, Ont.) · 2023Pooled it
- Raising awareness and preparation for what may come: next of kin experiences of advance care planning with frail, home-dwelling older adults in geriatric units.BMC health services research · 2025Trial
- Choosing how to decide: empowering patients for shared decision-making in end-of-life care.Medicine, health care, and philosophy · 2026Article
- Why children's research assent matters: Exploring three dimensions of autonomy.Nursing ethics · 2026Article
- [When the one who heals dies. The physician at the end of life].Revista medica del Instituto Mexicano del Seguro Social · 2026Review
- Patient Participation in Decision-Making During Nursing Care: A Relational Autonomy Perspective.Journal of advanced nursing · 2026Article
- From Care to Justice: Reframing Nursing Education Through Relational Ethics and Epistemic Inclusion.Nursing philosophy : an international journal for healthcare professionals · 2026Article
- Relational Autonomy, Dementia, and AI-Based Care Robots: Ethical Aspects of Using Machines to Care for People with Dementia.Asian bioethics review · 2026Article
- When advance directives clash with family consent: designing an operational framework for end-of-life decision-making in China and Korea.BMC medical ethics · 2026Article
- Severe behavioral and psychological symptoms of dementia: A clinical ethics study of cognitive-behavioral units in France.Journal of Alzheimer's disease : JAD · 2026Article
- Ethical considerations of AI integration in palliative care: a qualitative study.BMC palliative care · 2026Article
- Critical Medical Ethics as an Approach to the Debate About Assisted Suicide by the Example of Germany.Bioethics · 2026Article
- Palliative medicine in 2050: how will people live the last part of life?Future healthcare journal · 2026Article
- Balancing perspectives: a critical reflection on autonomy, respect and communication in end-of-life choice-making processes.BMC medical ethics · 2026Article
- Healthcare professionals' perceptions of ethical issues in palliative sedation: A moral case deliberation study in eight European countries.Palliative care and social practice · 2026Article
- 'I dream of the airplane, but I cannot board it': Exploring end-of-life aspirations with people who have lived experiences of homelessness.Palliative care and social practice · 2026Article
- From diagnosis to treatment: patients' attitudes toward cancer care.Frontiers in psychology · 2026Article
- Life, death, and 280 characters: a hashtag analysis of #AssistedSuicide on X (2015-2025).Frontiers in digital health · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundRespect for autonomy is a paramount principle in end-of-life ethics. Nevertheless, empirical studies show that decision-making, exclusively focused on the individual exercise of autonomy fails to align well with patients' preferences at the end of life. The need for a more contextualized approach that meets real-life complexities experienced in end-of-life practices has been repeatedly advocated. In this regard, the notion of 'relational autonomy' may be a suitable alternative approach. Relational autonomy has even been advanced as a foundational notion of palliative care, shared decision-making, and advance-care planning. However, relational autonomy in end-of-life care is far from being clearly conceptualized or practically operationalized. MAIN BODY: Here, we develop a relational account of autonomy in end-of-life care, one based on a dialogue between lived reality and conceptual thinking. We first show that the complexities of autonomy as experienced by patients and caregivers in end-of-life practices are inadequately acknowledged. Second, we critically reflect on how engaging a notion of relational autonomy can be an adequate answer to addressing these complexities. Our proposal brings into dialogue different ethical perspectives and incorporates multidimensional, socially embedded, scalar, and temporal aspects of relational theories of autonomy. We start our reflection with a case in end-of-life care, which we use as an illustration throughout our analysis.
conclusionThis article develops a relational account of autonomy, which responds to major shortcomings uncovered in the mainstream interpretation of this principle and which can be applied to end-of-life care practices.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.