Evidence map›Paper›PMID 32604137›Full record

ArticleCancer nursing

Stories of Lymphoma Survivors in Early Aftercare: A Narrative Inquiry.

Jolanda H H M Friesen-Storms, Gerrie J J W Bours, Danny J L Quadvlieg-Delnoy, Albine Moser, José M J Heijmans, Trudy van der Weijden, Anna J H M Beurskens, Kon-Siong G Jie

Open access · hybridAbstract read
In one paragraph

Article in Cancer nursing. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
0.7field-weighted citation impact, top 28% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it, 5 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 3 institutions in 3 countries.

Jolanda H H M Friesen-StormsAuthor Affiliations: Research Centre Autonomy and Participation of Persons With a Chronic Illness (Drs Friesen-Storms, Bours, Moser) and Academy of Nursing (Drs Friesen-Storms, Bours, and Moser), Zuyd University of Applied Sciences, Heerlen; Research Centre for Integrative Patient Centred Health Care, Heerlen, the Netherlands (Dr Jie); Department of Health Services Research (Dr Bours) and Department of Family Medicine (Drs Friesen, Moser, van der Weijden, and Beurskens), Care and Public Health Research Institute, Maastricht University; Zuyderland Medical Center, Sittard-Geleen (Dr Jie and Mr Quadvlieg-Delnoy); and Sytrec Psychotrauma Expertise Centre, Weert (Mr Heijmans), the Netherlands.
Gerrie J J W Bours
Danny J L Quadvlieg-Delnoy
Albine Moser
José M J Heijmans
Trudy van der Weijden
Anna J H M Beurskens
Kon-Siong G Jie
Institute of Highway Engineers · GBBridge University · SS's Heeren Loo · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundSurvivors of lymphoma experience multiple challenges after treatment. However, a lack of knowledge of in-depth experiences of lymphoma survivors in early aftercare persists.

objectiveTo gain an in-depth understanding of the experiences of lymphoma survivors in early aftercare who have received an aftercare consultation based on evidence-based guideline recommendations, with an advanced practice nurse.

methodsThis study used a narrative design. We recruited lymphoma survivors after a best-practice aftercare consultation with an advanced practice nurse. A total of 22 lymphoma survivors and 9 partners participated. Data were collected through narrative interviews and analyzed according to thematic narrative analysis.

resultsSix themes emerged: living and dealing with health consequences, coping with work and financial challenges, having a positive outlook and dealing with uncertainty, deriving strength from and experiencing tensions in relationships, getting through tough times in life, and receiving support from healthcare professionals.

conclusionsThe stories of lymphoma survivors in early aftercare revealed their experiences of how they coped with a range of challenges in their personal lives. Choosing an aftercare trajectory based on an aftercare consultation that encourages patients to think about their issues, goals, and possible aftercare options may be useful for their transition from treatment to survivorship. IMPLICATIONS FOR PRACTICE: Survivors' social support and self-management capabilities are important aspects to be addressed in cancer care. An aftercare consultation involving shared goal setting and care planning may help nurses provide personalized aftercare.

Indexed as

AftercareLymphomaHumansSocial SupportSurvivorsSurvivorship

Identifiers

PMID32604137
PMCPMC8560148
OpenAlexW3037032138

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.