Evidence map›Paper›PMID 32592023›Full record

ArticleCanadian journal of public health = Revue canadienne de sante publique2020

Pandemics, privacy, and public health research.

Alexander Bernier, Bartha Maria Knoppers

Erratum issuedAbstract read
In one paragraph

Article in Canadian journal of public health = Revue canadienne de sante publique, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

2 authors.

Alexander BernierCentre of Genomics and Policy, Faculty of Medicine, McGill University, 740, Avenue Dr. Penfield, Suite 5200, Montreal, Quebec, H3A 0G1, Canada. alexander.bernier@mail.mcgill.ca.ORCID 0000-0001-8615-8375
Bartha Maria KnoppersCentre of Genomics and Policy, Faculty of Medicine, McGill University, 740, Avenue Dr. Penfield, Suite 5200, Montreal, Quebec, H3A 0G1, Canada.

Funding

CIHR One4ALL: "Sharing Big Data for Health Innovation Advancing the Objectives of the Global Alliance for Genomics and Health (GA4GH) Regulatory and Ethics Work Stream" Genome Canada / CIHR (2019-2022)Genome Canada One4ALL: "Sharing Big Data for Health Innovation Advancing the Objectives of the Global Alliance for Genomics and Health (GA4GH) Regulatory and Ethics Work Stream" Genome Canada / CIHR (2019-2022)
6 · The paper itself

Abstract

Sharing data expediently for pandemic response purposes exposes healthcare providers in Canada to significant regulatory uncertainty. Duplicative and contradictory ethical and legal duties flowing from overlapping sources can stifle flows of medical data among clinicians, researchers, and institutions. Authorities should support caregivers and accelerate research by providing clear guidance to the health sector. Institutions should foster robust data stewardship and standardize their practices to those recognized among the international health informatics community. Reform is critical to ensuring Canadian healthcare providers can deliver efficient health responses that are integrated with dispersed and disparate national and international approaches.

Indexed as

Biomedical ResearchPublic HealthCanadaCoronavirus InfectionsCOVID-19HumansPandemicsPneumonia, ViralPrivacyCOVID-19Data sharingHealth governanceHealth policyPandemicPrivacy

Identifiers

PMID32592023
PMCPMC7318908

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.