ArticleJournal of the American Geriatrics Society2020
Achieving Health Equity in Embedded Pragmatic Trials for People Living with Dementia and Their Family Caregivers.
Article in Journal of the American Geriatrics Society, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
30 citing papers in PubMed, 1 synthesis or guideline pooled it, 38 citations in OpenAlex.
- Examining the Role of Community Engagement in Enhancing the Participation of Racial and Ethnic Minoritized Communities in Alzheimer's Disease Clinical Trials; A Rapid Review.The journal of prevention of Alzheimer's disease · 2024Pooled it
- Effect of advance care planning video on do-not-hospitalize orders for nursing home residents with advanced illness.BMC geriatrics · 2022Trial
- Open science in dementia care embedded pragmatic clinical trials.Psychology and aging · 2022Trial
- Barriers and Facilitators for Equitable Clinical Research Among Pragmatic Trialists: A Qualitative Study.Pragmatic and observational research · 2026Article
- A Systematic Review and Meta-Analysis of Physical Activity Interventions in Colorectal Cancer Survivors: An Evidence Evaluation Attempt Across Racial/Ethnic Groups.Healthcare (Basel, Switzerland) · 2025Review
- Article
- How Do Researchers Identify and Recruit Dementia Caregivers? A Scoping Review.The Gerontologist · 2024Article
- Detecting Agitated Behaviors in Nursing Home Residents With Dementia Using Electronic Medical Records.Journal of the American Medical Directors Association · 2024Article
- Integrating health equity into a national infrastructure to support pragmatic trials in dementia care.Journal of the American Geriatrics Society · 2024Article
- Post-trial responsibilities in pragmatic clinical trials: Fulfilling the promise of research to drive real-world change.Learning health systems · 2024Article
- The NIA IMPACT Collaboratory: History, impact, challenges, and the future of conducting ePCTs to improve dementia care.Journal of the American Geriatrics Society · 2024Article
- Mapping racial and ethnic healthcare disparities for persons living with dementia: A scoping review.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2024Article
- Algorithmic identification of persons with dementia for research recruitment: ethical considerations.Informatics for health & social care · 2024Article
- Pragmatic Clinical Trials for Dementia Care: Experience from the First 5 Years of the IMPACT Collaboratory.Generations (San Francisco, Calif.) · 2024Article
- Telehealth delivery of physical therapist-led interventions for persons with chronic low back pain in underserved communities: lessons from pragmatic clinical trials.Frontiers in pain research (Lausanne, Switzerland) · 2024Article
- The Case for Conducting Pragmatic Dementia Care Trials in Medicaid Home and Community-Based Service Settings.Journal of the American Medical Directors Association · 2023Article
- Reality of Family Caregiving for Hispanics With Alzheimer's Disease and Related Dementias: A Qualitative Analysis.Journal of palliative medicine · 2023Article
- Preparing for pragmatic trials in dementia care: Health equity considerations for nonpharmacological interventions.Journal of the American Geriatrics Society · 2023Article
- Feasibility of a community-adapted multi-domain intervention for dementia prevention among older adults: a research protocol.Archives of public health = Archives belges de sante publique · 2023Article
- It's More Than Language: Cultural Adaptation of a Proven Dementia Care Intervention for Hispanic/Latino Caregivers.The Gerontologist · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 7 institutions in 1 country.
Funding
Abstract
Embedded pragmatic clinical trials (ePCTs) advance research on Alzheimer's disease/Alzheimer's disease and related dementias (AD/ADRD) in real-world contexts; however, health equity issues have not yet been fully considered, assessed, or integrated into ePCT designs. Health disparity populations may not be well represented in ePCTs without special efforts to identify and successfully recruit sites of care that serve larger numbers of these populations. The National Institute on Aging (NIA) Imbedded Pragmatic Alzheimer's disease (AD) and AD-Related Dementias (AD/ADRD) Clinical Trials (IMPACT) Collaboratory's Health Equity Team will contribute to the overall mission of the collaboratory by developing and implementing strategies to address health equity in the conduct of ePCTs and ensure the collaboratory is a national resource for all Americans with dementia. As a first step toward meeting these goals, this article reviews what is currently known about the inclusion of health disparities populations of people living with dementia (PLWD) and their caregivers in ePCTs, highlights unique challenges related to health equity in the conduct of ePCTs, and suggests priority areas in the design and implementation of ePCTs to increase the awareness and avoidance of pitfalls that may perpetuate and magnify healthcare disparities. J Am Geriatr Soc 68:S8-S13, 2020.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.