Evidence map›Paper›PMID 32589110›Full record

ArticleClinical gerontologist

Long-Distance Caregivers: What are Their Experiences with Formal Care Providers?

Francesca Falzarano, Verena R Cimarolli, Jillian Minahan, Amy Horowitz

Open access · greenAbstract read
In one paragraph

Article in Clinical gerontologist. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
1.2field-weighted citation impact, top 22% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 18 citations in OpenAlex.

  1. Long-Distance Family Caregivers' Perceptions of Burden and Strain Scales Developed for Proximate Family Caregivers.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026
    Article
  2. Article
  3. Article
  4. Article
  5. Article
  6. Review
  7. Living well while providing support: validation of LTCQ-Carer for assessing informal carers' quality of life.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023
    Article
  8. Article
  9. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 3 institutions in 1 country.

Francesca FalzaranoDivision of Geriatrics and Palliative Medicine, Weill Cornell Medicine, New York, New York, USA.ORCID 0000-0003-1090-3337
Verena R CimarolliLeadingAge LTSS Center @UMass Boston, Washington, District of Columbia, USA.
Jillian MinahanPsychology Department, Fordham University, Bronx, New York, USA.
Amy HorowitzGraduate School of Social Services, Fordham University, New York, New York, USA.ORCID 0000-0002-8696-0760
Fordham University · USCornell University · USLeading Age · US

Funding

Pilot CoreP30AG022845 · NIA · WEILL MEDICAL COLL OF CORNELL UNIV · PI Manney Carrington Reid, ELAINE WETHINGTON · 2003 to 2026
$15.2M
The Weill Cornell Medicine Research Training Program in Behavioral GeriatricsT32AG049666 · NIA · WEILL MEDICAL COLL OF CORNELL UNIV · PI SARA J CZAJA, Manney Carrington Reid · 2016 to 2026
$3.2M
Long Distance Caregiving: Unique Challenges and Service NeedsR21AG050018 · NIA · FORDHAM UNIVERSITY · PI HOROWITZ, AMY · 2016 to 2017
$433k
NIA NIH HHS P30 AG022845NIA NIH HHS R21 AG050018NIA NIH HHS T32 AG049666
6 · The paper itself

Abstract

objectivesExtensive literature has documented the experiences of informal caregivers and their interactions with formal care providers, yet this research is almost entirely limited to caregivers who live near their care-recipients. This study aims to describe long-distance caregivers' (LDC) experiences (e.g., satisfaction and challenges) with formal care providers. Subgroup differences were examined based on the care-recipient's (CR) dementia status and residential setting (community versus residential care).

methodsData were collected from 296 LDCs (

resultsChallenges related to formal care providers were significantly greater and satisfaction significantly lower among LDCs of CRs in residential care, irrespective of dementia status, when compared to LDCs of CRs in the community.

conclusionsThis study provides insights into the experiences of a growing segment of the caregiver population managing care from a distance, specifically in their interactions with formal care providers. CLINICAL IMPLICATIONS: The results of this study point to the possible necessity for the development of novel interventions to improve and enhance communication and collaboration between FCPs and informal caregivers.

Indexed as

CaregiversDementiaCommunicationHumanscaregivingformal care providersLong-distance caregivinglong-term carenursing homes

Identifiers

PMID32589110
PMCPMC7762738
OpenAlexW3037134960

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.