Trial reportQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2021
Translating clinical and patient-reported data to tailored shared decision reports with predictive analytics for knee and hip arthritis.
Trial report in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 2 syntheses or guidelines pooled it, 37 citations in OpenAlex.
- Exploring trends and autonomy levels of adaptive business intelligence in healthcare: A systematic review.PloS one · 2024Pooled it
- Are Patient-Reported Outcome Measures for Distal Radius Fractures Validated for Spanish and Culture? A Systematic Review.The Journal of hand surgery · 2023Pooled it
- Evaluating a web-based personalized decision report for total knee or hip replacement: Lessons learned from patients.Journal of evaluation in clinical practice · 2023Trial
- Trial
- Shared decision-making and patient decision aids in knee osteoarthritis: a scoping review.Knee surgery & related research · 2026Review
- Sociodemographic and Clinical Factors Associated With Response to 1-Year Postarthroplasty Patient-Reported Outcome Measures.Arthroplasty today · 2026Article
- Implementation of clinical decision support tools for treatment selection in knee osteoarthritis: a scoping review.Therapeutic advances in musculoskeletal disease · 2026Review
- A Targeted Literature Review and Patient Focus Groups to Develop Recommendations for Reporting Patient-Reported Measures to Patients and Consumers in Clinical Quality Registries.Health services insights · 2026Article
- Shared decision making using digital twins in knee osteoarthritis care: a randomized clinical trial of an AI-enabled decision aid versus education alone on decision quality, physical function, and user experience.EClinicalMedicine · 2025Article
- Activity outcomes after hip arthroplasty: an information tool based on patients' experience captured in a hospital registry.BMC musculoskeletal disorders · 2025Article
- Coaching Patients to Understand and Use Patient-Reported Outcome Data: Intervention Design and Evaluation.JMIR formative research · 2025Article
- Personalized Predictions for Changes in Knee Pain Among Patients With Osteoarthritis Participating in Supervised Exercise and Education: Prognostic Model Study.JMIR rehabilitation and assistive technologies · 2025Article
- Patients' experience on pain outcomes after hip arthroplasty: insights from an information tool based on registry data.BMC musculoskeletal disorders · 2024Article
- Article
- One report, multiple aims: orthopedic surgeons vary how they use patient-reported outcomes with patients.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Patients' perspectives on the benefits of feedback on patient-reported outcome measures in a web-based personalized decision report for hip and knee osteoarthritis.BMC musculoskeletal disorders · 2022Article
- Improving multimorbidity measurement using individualized disease-specific quality of life impact assessments: predictive validity of a new comorbidity index.Health and quality of life outcomes · 2022Article
- "This is not negotiable. You need to do this…": A directed content analysis of decision making in rehabilitation after knee arthroplasty.Journal of evaluation in clinical practice · 2022Article
- Using feedback tools to enhance the quality and experience of care.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 3 institutions in 1 country.
Funding
Abstract
introductionNew informatics tools can transform evidence-based information to individualized predictive reports to serve shared decisions in clinic. We developed a web-based system to collect patient-reported outcomes (PROs) and medical risk factors and to compare responses to national registry data. The system generates predicted outcomes for individual patients and a report for use in clinic to support decisions. We present the report development, presentation, and early experience implementing this PRO-based, shared decision report for knee and hip arthritis patients seeking orthopedic evaluation.
methodsIterative patient and clinician interviews defined report content and visual display. The web-system supports: (a) collection of PROs and risk data at home or in office, (b) automated statistical processing of responses compared to national data, (c) individualized estimates of likely pain relief and functional gain if surgery is elected, and (d) graphical reports to support shared decisions. The system was implemented at 12 sites with 26 surgeons in an ongoing cluster randomized trial.
resultsClinicians and patients recommended that pain and function as well as clinical risk factors (e.g., BMI, smoking) be presented to frame the discussion. Color and graphics support patient understanding. To date, 7891 patients completed the assessment before the visit and 56% consented to study participation. Reports were generated for 98% of patients and 68% of patients recalled reviewing the report with their surgeon.
conclusionsInformatics solutions can generate timely, tailored office reports including PROs and predictive analytics. Patients successfully complete the pre-visit PRO assessments and clinicians and patients value the report to support shared surgical decisions.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.