ArticleBMC geriatrics2020
Family caregiving in the community up to 8-years after onset of dementia.
Article in BMC geriatrics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 35 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
35 citing papers in PubMed.
- Effects of the tailored activity program (TAP) on dementia-related symptoms, health events and caregiver wellbeing: a randomized controlled trial.BMC geriatrics · 2021Trial
- A longitudinal evaluation of family caregivers' willingness to pay for an in-home nonpharmacologic intervention for people living with dementia: results from a randomized trial.International psychogeriatrics · 2021Trial
- Plans4Care, a web application providing caregivers personalized solutions to manage dementia-related care challenges: Proof of concept and efficacy trial.Contemporary clinical trials communications · 2026Article
- How do US states define person-centered and family-involved care in assisted living regulations.Frontiers in dementia · 2026Article
- The cost of non-drug interventions that improve function and reduce dementia-related behaviors.BMC geriatrics · 2025Article
- Discontinuity of social support among US adults with cognitive impairment before and after the confirmed diagnosis of dementia: a matched ambidirectional cohort study.BMC medicine · 2025Article
- Caregiving burdens of task time and task difficulty among paid and unpaid caregivers of persons living with dementia.Frontiers in public health · 2025Article
- Article
- Sentiment Dynamics Among Informal Caregivers in Web-Based Alzheimer Communities: Systematic Analysis of Emotional Support and Interaction Patterns.JMIR aging · 2024Article
- Association of Caregiving Receipt With Mental Health Utilization in a National Cohort of Older Adults.The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry · 2024Article
- Ascertaining Out-of-Pocket Costs of Dementia Care: Feasibility Study of a Web-Based Weekly Survey.JMIR formative research · 2024Article
- Determinants of trajectories of informal caregiving in later life: evidence from England.European journal of ageing · 2024Article
- Cross-National Analysis of the Associations Between Familism and Self-Efficacy in Family Caregivers of People With Dementia: Effects on Burden and Depression.Journal of aging and health · 2024Article
- National Estimates of Incremental Work Absenteeism Costs Associated With Adult Children of Parents With Alzheimer's Disease and Related Dementias.The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry · 2024Article
- Social Media Discourse Related to Caregiving for Older Adults Living With Alzheimer Disease and Related Dementias: Computational and Qualitative Study.JMIR aging · 2024Article
- 2024 Alzheimer's disease facts and figures.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2024Article
- Burden and Depression among Empirically-Derived Subgroups of Family Caregivers for Individuals With Dementia.Journal of geriatric psychiatry and neurology · 2024Article
- Caregiving for dementia: trends pre-post onset and predictive factors of family caregiving (2002-2018).Health affairs scholar · 2024Article
- Risk of dementia among veterans experiencing homelessness and housing instability.Journal of the American Geriatrics Society · 2024Article
- Evaluating Elements of the Care Partner Experience in Individuals Who Care for People with Alzheimer's Disease Across the Severity Spectrum.Neurology and therapy · 2024Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
backgroundPersons with Alzheimer's disease and related dementias (ADRD) receive care from family/friends, but how care changes from the onset of dementia remains less understood.
methodsWe used the Health and Retirement Study (2002-2012) to identify community-dwelling individuals predicted to have incident ADRD. We investigated the amount of caregiving received for activities of daily living in the 8-years after disease onset.
resultsAt incidence (n = 1158), persons with ADRD received 151 h (SD = 231) of caregiving a month, 25 (SD = 26) caregiving days a month and had 1.3 (SD = 1.4) caregivers a month. By 8-years post incidence, 187 (16%) individuals transitioned to a nursing home and 662 (57%) died in the community. Community-dwelling persons with ADRD at 8-years post incidence (n = 30) received 283 h (SD = 257) of caregiving, 38 (SD = 24) caregiving days, and had 2.2 (SD = 1.3) caregivers.
conclusionsCommunity-dwelling persons with ADRD receive a substantial amount of caregiving over the first 8-years after disease onset.
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