ArticlePloS one2020
Communication and shared decision-making with patients with limited health literacy; helpful strategies, barriers and suggestions for improvement reported by hospital-based palliative care providers.
Article in PloS one, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 65 papers, 2 of them syntheses that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
65 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Experiences and Perceptions of Medication Management Communication During Transitions of Care for Residents in Aged Care Homes and Their Caregivers: A Qualitative Meta-Synthesis.Journal of clinical nursing · 2025Pooled it
- Pooled it
- Shared decision-making with patients with limited health literacy - experiences and needs of GPs regarding values clarification.Scandinavian journal of primary health care · 2026Article
- Shared Decision-Making with Patients with Multimorbidity and Limited Health Literacy: The Importance of Values Clarification.Journal of general internal medicine · 2026Article
- Patient-Reported Satisfaction With Inpatient Palliative Care at a Tertiary Hospital in Bangladesh: A Cross-Sectional Study.Health science reports · 2026Article
- The Role of Emotions in Health Literacy and Patient Education: Trends, Technologies, and Future Opportunities-A Scoping Review.Healthcare (Basel, Switzerland) · 2026Review
- Establishing development strategies and improvement paths for decision coach competencies in shared decision-making using an integrated accessibility-performance analysis and network relation map approach.BMC medical informatics and decision making · 2026Article
- Just Semantics? How Diagnostic Criteria Influence Physician-Patient Narratives in Alzheimer's Disease.Neuro-degenerative diseases · 2026Article
- Moving toward meaningful shared decision-making in neonatal care: clinical practice and policy implications in Korea.Clinical and experimental pediatrics · 2026Article
- Role of Shame and Concealment in Patient-Provider Communication Among Individuals With Low Health Literacy: Protocol for a Scoping Review.JMIR research protocols · 2026Article
- Identifying patient-centered communication barriers in palliative care.Revista da Escola de Enfermagem da U S P · 2026Article
- Shared decision-making in primary care: barriers and facilitators from the physician's and patient's perspectives: a scoping review.Archives of medical science : AMS · 2026Article
- Evaluation of Adherence to Clinical Guidelines for Antimicrobial Prescribing in Pregnant Patients: A Retrospective Cross-Sectional Observational Study in Tabuk, Saudi Arabia.International journal of women's health · 2026Article
- Understanding shared decision-making among patients with limited health literacy: a realist review protocol.Systematic reviews · 2025Article
- Barriers to and Facilitators of Shared Decision-Making Implementation in Fertility Preservation for Patients With Cancer: A Qualitative Study.Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing · 2025Article
- Desired dementia care towards end of life: Development and experiences of implementing a new approach to improve person-centred dementia care.Journal of advanced nursing · 2025Article
- Accessibility, clarity, and organizational opportunities to enhance interprofessional collaboration in alcohol interventions: A qualitative study.BMC health services research · 2025Article
- In the shadow of stability lies ruin: Occult vascular injuries in geriatric pelvic trauma.World journal of clinical cases · 2025Article
- Unraveling functional neurological disorder in pediatric populations: A systematic review of diagnosis, treatment, and outcomes.World journal of clinical pediatrics · 2025Article
- Identifying Dimensions of Organizational Health Literacy in Hospitals: A Scoping Review.Iranian journal of public health · 2025Review
5 more citing papers are in PubMed but not listed here.
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundCommunication and shared decision-making (SDM) are essential to patient-centered care. Hospital-based palliative care with patients with limited health literacy (LHL) poses particular demands on communication. In this context, patients' emotions and vulnerable condition impact their skills to obtain, understand, process and apply information about health and healthcare even more. If healthcare providers (HCPs) meet these demands, it could enhance communication. In this study, HCPs were interviewed and asked for their strategies, barriers and suggestions for improvement regarding communication and SDM with LHL patients in hospital-based palliative care.
methodsA qualitative interview study was conducted in 2018 in four Dutch hospitals with 17 HCPs-11 physicians and 6 nurses. Transcripts were analyzed using thematic analysis.
resultsIn general HCPs recognized limited literacy as a concept, however, they did not recognize limited health literacy. Regarding SDM some HCPs were strong advocates, others did not believe in SDM as a concept and perceived it as unfeasible. Furthermore, five themes, acting as either strategies, barriers or suggestions for improvement emerged from the interviews: 1) time management; 2) HCPs' communication skills; 3) information tailoring; 4) characteristics of patients and significant others; 5) the content of the medical information.
conclusionsAccording to HCPs, more time to communicate with their patients could resolve the most prominent barriers emerged from this study. Further research should investigate the organizational possibilities for this and the actual effectiveness of additional time on effective communication and SDM. Additionally, more awareness for the concept of LHL is needed as a precondition for recognizing LHL. Furthermore, future research should be directed towards opportunities for tailoring communication, and the extent to which limited knowledge and complex information affect communication and SDM. This study provides first insights into perspectives of HCPs, indicating directions for research on communication, SDM and LHL in hospital-based palliative care.
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