SynthesisThe American journal of hospice & palliative care2021
Improving Care Experiences for Patients and Caregivers at End of Life: A Systematic Review.
Synthesis in The American journal of hospice & palliative care, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed.
- Private Equity Ownership in Hospice Care: A Systematic Review (2012-2026).The American journal of hospice & palliative care · 2026Article
- Ensuring a good death: Priorities and concerns of healthcare personnel across healthcare settings.Palliative & supportive care · 2026Article
- It Takes a Village: Sources of Spiritual Care in Hospice That Support the Well-being of African-American Hospice Patients and Their Caregivers in the USA.Journal of religion and health · 2026Article
- Grief after the death of a close relative: a study of associated factors and perceptions of bereavement support.BMC palliative care · 2026Article
- The Impact of Dementia Caregiving on the Health of the Spousal Caregiver.Medicina (Kaunas, Lithuania) · 2026Review
- Article
- An umbrella review of patient- and carer-reported measures for assessing adult end-of-life care quality outcomes.EClinicalMedicine · 2025Article
- Experiences of providing end-of-life care in adult intensive care units: a qualitative study.BMC nursing · 2025Article
- Experiences of healthcare professionals providing palliative care in home settings - a scoping review.BMC palliative care · 2025Article
- Enhancing end-of-life care in Ghana: nurse strategies and practices in addressing patient needs.BMC palliative care · 2025Article
- Close but Not Close Enough: How Distance Caregiving is Associated with Hospice Family Caregiver Hospice Communication Experiences.Health communication · 2024Article
- End-Of-Life Care Planning and Bereavement Practices Among Adult Day Services Centers, 2018.The American journal of hospice & palliative care · 2024Article
- Exploring caregiver experiences and support needs in end-of-life care for people living with HIV: A scoping review protocol.PloS one · 2024Article
- Reliable and Valid Survey-Based Measures to Assess Quality of Care in Home-Based Serious Illness Programs.Journal of palliative medicine · 2022Article
- Hospice Improves Care Quality For Older Adults With Dementia In Their Last Month Of Life.Health affairs (Project Hope) · 2022Article
- Palliative Oncological Patients with Insomnia: Concerns of the Patients and Their Relatives' Perception.International journal of environmental research and public health · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
Abstract
backgroundEnd-of-life care is increasing as the US population ages. Approaches to providing high-quality end-of-life care vary across setting, diseases, and populations. Several data collection tools measure patient and/or caregiver care experiences at end of life and can be used for quality improvement. Previous reviews examined palliative care improvements or available measures but none explicitly on improving care experiences. We reviewed literature on improving patient and/or caregiver end-of-life care experiences.
designWe searched U.S. English-language peer-reviewed and grey literature after 2000 on adult end-of-life care experiences. We followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines for quantitative studies, Enhancing Transparency in Reporting the Synthesis of Qualitative Research approach for qualitative studies, and Assessment of Multiple Systematic Reviews tool for the literature reviews.
settingPalliative and hospice care. POPULATION: Full-text abstraction of 84 articles, identifying 16 articles. MEASURES: Patient and/or caregiver end-of-life care experiences (captured through administrative data or direct report).
resultsArticles examined palliative care experiences across settings; none studied hospice care experiences. Patients and/or caregivers assessed overall care experiences, clinician-staff interactions, provider communication, respect and trust, timeliness of care, spiritual support, caregiver knowledge of care plans, or bereavement support. Efforts aimed at improving end-of-life care experiences are limited and show mixed results.
conclusionsLiterature on improving patient and/or caregiver end-of-life care experiences is emerging and focused on palliative care experiences. Evidence on improving hospice care experiences is lacking. Research on strategies for improving end-of-life care experiences should go beyond overall care experiences to include specific aspects of palliative and hospice care experiences.
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Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.