Observational studyJournal of epidemiology and global health2020
Care-Related Quality of Life of Caregivers of Beta-Thalassemia Major Children: An Epidemiological Study in Eastern India.
Observational study in Journal of epidemiology and global health, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
What it found
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The trial behind it
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Who cites it
13 citing papers in PubMed, 25 citations in OpenAlex.
- Role of Family Dynamics in Shaping Coping Strategies Among Children with Transfusion-Dependent Thalassemia.Indian pediatrics · 2026Article
- A Comprehensive Gap Analysis of Risk Factors for Transfusion Dependent Thalassemia in Siblings.Indian journal of hematology & blood transfusion : an official journal of Indian Society of Hematology and Blood Transfusion · 2025Article
- Nursing interventions for improving quality of life among parents with major Thalassemic children: a scoping review.BMC nursing · 2025Article
- The CarerQol Instrument: A Systematic Review, Validity Analysis, and Generalization Reliability Study.Journal of clinical medicine · 2025Review
- Systematic Scoping Review of Socioeconomic Burden and Associated Psychosocial Impact in Patients With Rare Kidney Diseases and Their Caregivers.Kidney international reports · 2025Article
- Quality of life and thalassemia in India: A scoping review.Journal of family medicine and primary care · 2024Article
- A cross-sectional study: caregiver burden and related determinants of adult patients with β-thalassemia major in mainland China.BMC nursing · 2024Article
- Systematic literature review of the indirect costs and humanistic burden of β-thalassemia.Therapeutic advances in hematology · 2024Review
- Factors associated with care- and health-related quality of life of caregivers of children with juvenile idiopathic arthritis.Pediatric rheumatology online journal · 2022Article
- Quality of life and challenges experienced by the surviving adults with transfusion dependent thalassaemia in Malaysia: a cross sectional study.Health and quality of life outcomes · 2022Article
- Clinical Study of Mobile Application- (App-) Based Family-Centered Care (FCC) Model Combined with Comprehensive Iron Removal Treatment in Children with Severe Beta Thalassemia.Applied bionics and biomechanics · 2022Article
- The psychosocial challenges of mothers of children with thalassemia: A qualitative study.Journal of education and health promotion · 2022Article
- Understanding the impact of COVID-19 pandemic on health-related quality of life amongst Iranian patients with beta thalassemia major: a grounded theory.Primary health care research & development · 2021Article
Corrections and comments
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Authors and funding
6 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Caregivers are the persons who provide care at the time of distress or illness. They face many stress and strain to provide the best possible medical care for their children. There are very few studies that explored the care-related quality of life (CarerQoL) of the caregivers of thalassemic children and its correlates. With this background, the current study was designed to explore the CarerQoL of the caregivers of
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