ArticleEuropean journal of cancer care2020
Enduring psychological impact of childhood cancer on survivors and their families in Ireland: A national qualitative study.
Article in European journal of cancer care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 2 of them syntheses that pooled it.
What it found
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Who cites it
11 citing papers in PubMed, 2 syntheses or guidelines pooled it, 25 citations in OpenAlex.
- The Prevalence and Associated Factors of Cancer-Related Worries in Adult Survivors of Childhood Cancer: A Systematic Review.Psycho-oncology · 2025Pooled it
- Taking Care of an Adolescent and Young Adult Cancer Survivor: A Systematic Review of the Impact of Cancer on Family Caregivers.International journal of environmental research and public health · 2023Pooled it
- Addressing survivorship care gaps through digital innovation: opportunities, challenges, and ethical considerations in the e-QuoL project.BMC cancer · 2025Article
- Cancer care coordination determinants of depression in head and neck cancer survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Organizing long-term follow-up care for pediatric cancer survivors: a socio-ecological approach.Frontiers in public health · 2025Article
- Online Ambassador Visits for Hospitalized Children With Cancer: Qualitative Evaluation of Implementation.JMIR pediatrics and parenting · 2024Article
- Mothers' efforts to overcome difficult twists and turns in living with children with cancer: a phenomenological study.BMC women's health · 2024Article
- Supportive care needs of adolescents and young adults 5 years after cancer: a qualitative study.Frontiers in psychology · 2024Article
- Childhood cancer survivors' and their parents' experiences with participation in a physical and social intervention during cancer treatment: A RESPECT study.Journal of advanced nursing · 2022Article
- The Symptom Experience in Pediatric Cancer: Current Conceptualizations and Future Directions.Current oncology reports · 2022Review
- Enduring psychological impact of childhood cancer on survivors and their families in Ireland: A national qualitative study.European journal of cancer care · 2020Article
Corrections and comments
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Authors and funding
3 authors at 2 institutions in 1 country.
Funding
Abstract
objectiveTo establish the major expressed psychological needs of adult survivors of childhood cancer living in Ireland.
methodsSeven focus groups were conducted with adult survivors of childhood cancer and their parents in 2018. Survivors were invited to participate if they were diagnosed with cancer before age 18.
resultsThirty-three participants (15 survivors, 18 parents; 27 female, 6 male) were included. They had experienced a range of haematological and solid tumours. Five themes were generated: (a) Enduring psychological impact on survivors; many survivors experience delayed trauma and mental health crises in adulthood. (b) Enduring psychological impact on family members; parents and siblings have unmet psychological needs relating to the family's experience of cancer. (c) Enduring impact on family dynamics; survivors and parents expressed fear and guilt relating to cancer which impacted on family interactions. (d) Challenges accessing support; psychological support services are inadequate to meet expressed needs. (e) Desired model of care; no single service model appeals to all survivors, and flexibility is required in the delivery of psychological support.
conclusionAdult survivors of childhood cancer and their family members experience enduring psychological effects relating to their diagnosis and treatment. Psychological support services are inadequate to meet the expressed needs of this growing population.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.