Evidence map›Paper›PMID 32535857›Full record

ArticleAging clinical and experimental research2021

Using aggregated data from Swedish national quality registries as tools to describe health conditions of older adults with complex needs.

Linda Johansson, Deborah Finkel, Christina Lannering, Anna K Dahl Aslan, Boel Andersson-Gäre, Jenny Hallgren, Ulrika Lindmark, Marie Ernsth Bravell

Abstract read
In one paragraph

Article in Aging clinical and experimental research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Linda JohanssonInstitute of Gerontology, Aging Research Network - Jönköping(ARN-J), School of Health and Welfare, Jönköping University, Jönköping, Sweden. linda.johansson@ju.se.ORCID http://orcid.org/0000-0001-7101-3165
Deborah FinkelInstitute of Gerontology, Aging Research Network - Jönköping(ARN-J), School of Health and Welfare, Jönköping University, Jönköping, Sweden.
Christina LanneringRegion Jönköping County, Futurum, Ryhov, Jönköping, Sweden.
Anna K Dahl AslanInstitute of Gerontology, Aging Research Network - Jönköping(ARN-J), School of Health and Welfare, Jönköping University, Jönköping, Sweden.
Boel Andersson-GäreRegion Jönköping County, Futurum, Ryhov, Jönköping, Sweden.
Jenny HallgrenInstitute of Gerontology, Aging Research Network - Jönköping(ARN-J), School of Health and Welfare, Jönköping University, Jönköping, Sweden.
Ulrika LindmarkDepartment of Natural Science and Biomedicine, School of Health and Welfare, Centre for Oral Health and Aging Research Network - Jönköping (ARN-J), Jönköping University, Jönköping, Sweden.
Marie Ernsth BravellInstitute of Gerontology, Aging Research Network - Jönköping(ARN-J), School of Health and Welfare, Jönköping University, Jönköping, Sweden.

Funding

Vetenskapsrådet 521-2013-8689
6 · The paper itself

Abstract

backgroundCombining National Quality Registries (NQRs) with existing National Health Registries (NHRs) might make it possible to get a wider picture of older adults health situation. The aim was to examine the feasibility of aggregating data across different NQRs and existing NHRs to explore the possibility to investigate trajectories and patterns of disease and care, specifically for the most ill older adults.

methodA Swedish twin population (N = 44,816) was linked to nine NQRs and four NHRs. A descriptive mixed-method study was performed. A manifest content analysis identified which health parameters were collected from each NQR. Factor analysis identified patterns in representation across NQRs. Two case studies illustrated individual trajectories of care by using NQRs and NHRs.

resultsAbout 36% of the population was registered in one or more NQRs. NQRs included 1849 variables that were sorted into 13 categories with extensive overlap across the NQRs. Health and function variables were identified, but few social or cognitive variables. Even though most individuals demonstrated unique patterns of multi-morbidities, factor analysis identified three clusters of representation in the NQRs with sufficient sample sizes for future investigations. The two cases illustrated the possibility of following patterns of disease and trajectories of care.

conclusionsNQRs seem to be a significant source for collecting data about a population that may be underrepresented in most research on aging because of their age and poor health. However, NQRs are primarily disease related, and further development of the registries to maximize coverage and utility is needed.

Indexed as

Research DesignAgedHumansRegistriesSwedenHealth careNational quality registerOlder adultsSocial service

Identifiers

PMID32535857
PMCPMC8081709

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.