Evidence map›Paper›PMID 32532332›Full record

ArticleBMC psychology2020

Understanding relatives' experience of death rattle.

Harriëtte J van Esch, Martine E Lokker, Judith Rietjens, Lia van Zuylen, Carin C D van der Rijt, Agnes van der Heide

Abstract read
In one paragraph

Article in BMC psychology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Trial
  2. Article
  3. Article
  4. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Harriëtte J van EschDepartment of Medical Oncology, Erasmus MC Cancer Institute, 3000CA, Rotterdam, the Netherlands. h.vanesch@erasmusmc.nl.ORCID http://orcid.org/0000-0003-3234-8135
Martine E LokkerErasmus MC, Department of Public health, Wytema weg 80, Rotterdam, 3015 CN, the Netherlands.
Judith RietjensErasmus MC, Department of Public health, Wytema weg 80, Rotterdam, 3015 CN, the Netherlands.
Lia van ZuylenDepartment of Medical Oncology, Erasmus MC Cancer Institute, 3000CA, Rotterdam, the Netherlands.
Carin C D van der RijtDepartment of Medical Oncology, Erasmus MC Cancer Institute, 3000CA, Rotterdam, the Netherlands.
Agnes van der HeideLaurens Cadenza, Oosterhagen 239, Rotterdam, 3078 CL, the Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundDeath rattle is a frequently occurring symptom in the last phase of life. The experience of death rattle of relatives has been found to vary. It is unclear if treatment with medication is useful. The most fitting solution for this symptom is still under debate.

aimThis study aims to better understand the experience of relatives of their loved ones' death rattle.

designA qualitative interview study with a phenomenological approach was performed. Data were collected through semi-structured interviews which were audio recorded, transcribed and analyzed using qualitative content analysis.

participantsNineteen family members of 15 patients were interviewed.

resultsMost relatives had experienced death rattle as a distressing symptom. Concerns about how long the rattling would last resulted in more distress. Experience of death rattle was less fierce when other symptoms such as pain or dyspnea prevailed. Hearing the sound of death rattle sometimes reminded relatives of previously witnessed dying trajectories, which seemed to increase their current level of distress. The experience of death rattle is not always influenced by the amount and quality of information given about the symptom.

conclusionDeath rattle is a stressful symptom and the experience of relatives is influenced by more factors than the sound itself. Communication and information alone seem inefficient to address relatives' distress. The best approach for dealing with this symptom is unclear. Further research needs to show if prophylactically given drugs may be helpful in its prevention.

Indexed as

Attitude to DeathFamilyRespiratory SoundsAgedAged, 80 and overFemaleHumansInterview, PsychologicalMaleMiddle AgedQualitative ResearchTerminally Ill

Identifiers

PMID32532332
PMCPMC7291713

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.