ArticleJournal of the American Society of Nephrology : JASN2020
Measuring Patient Activation as Part of Kidney Disease Policy: Are We There Yet?
Article in Journal of the American Society of Nephrology : JASN, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
26 citing papers in PubMed, 1 synthesis or guideline pooled it, 53 citations in OpenAlex.
- What Is the Association Between Agency and Levels of Capability and Comfort in Musculoskeletal Care? A Systematic Review.Clinical orthopaedics and related research · 2024Pooled it
- Community Health Worker Support for Hispanic and Latino Individuals Receiving Hemodialysis: The Navigate-Kidney Randomized Clinical Trial.JAMA internal medicine · 2026Trial
- Trial
- Article
- Patient Activation Impacts Exercise in Older Adults With Kidney Disease.Kidney international reports · 2025Article
- The Minimal Clinically Important Difference for the "Patient Activation Measure".Kidney international reports · 2025Article
- A survey on the association between patient activation and quality of life among patients with chronic kidney disease in Japan.Journal of nephrology · 2025Observational
- Patient activation levels in cardiovascular disease: a cross-sectional study in Brazilian community pharmacies.Sao Paulo medical journal = Revista paulista de medicina · 2025Article
- Article
- Article
- Health Competence Is a Determinant of Exercise Frequency in Older Adults With CKD.Kidney international reports · 2024Article
- The feasibility of Technology, Application, Self-Management for Kidney (TASK) intervention in post-kidney transplant recipients using a pre/posttest design.Pilot and feasibility studies · 2023Article
- Parent Activation in the Neonatal Intensive Care Unit.American journal of perinatology · 2023Article
- Article
- A qualitative exploration of the facilitators and barriers to self-management in kidney transplant recipients.Journal of nephrology · 2022Article
- Changes in patient activation in people starting dialysis: A prospective longitudinal, observational study.Hemodialysis international. International Symposium on Home Hemodialysis · 2022Observational
- Patient Activation: The Cornerstone of Effective Self-Management in Chronic Kidney Disease?Kidney and dialysis · 2022Article
- Patient activation and its association with symptom burden and quality of life across the spectrum of chronic kidney disease stages in England.BMC nephrology · 2022Article
- Patient Activation Among Prevalent Hemodialysis Patients: An Observational Cross-Sectional Study.Journal of patient experience · 2022Article
- Qualitative Analyses to Amplify Patient and Care Partner Needs for Self-Management in Glomerular Disease.Kidney international reports · 2022Article
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Authors and funding
2 authors at 1 institution in 1 country.
Funding
Abstract
Optimal care occurs when patients possess the skills, knowledge, and confidence needed to effectively manage their health. Promoting such patient activation in kidney disease care is increasingly being prioritized, and patient activation has recently emerged as central to kidney disease legislative policy in the United States. Two options of the Centers for Medicare and Medicaid Services Kidney Care Choices model-the Kidney Care First option and the Comprehensive Kidney Care Contracting option-now include patient activation as a quality metric; both models specifically name the patient activation measure (PAM) as the patient-reported outcome to use when assessing activation in kidney disease. Because nephrology practices participating in these models will receive capitated payments according to changes in patients' PAM scores, it is time to more critically evaluate this measure as it applies to patients with kidney disease. In this review, we raise important issues related to the PAM's applicability to kidney health, review and summarize existing literature that applies this measure to patients with kidney disease, and outline key elements to consider when implementing the PAM into practice and policy. Our aim is to spur further dialogue regarding how to assess and address patient activation in kidney disease to facilitate best practices for supporting patients in the successful management of their kidney health.
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Registered trials
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