ArticleHaemophilia : the official journal of the World Federation of Hemophilia2020
Registry of patients with congenital bleeding disorders and COVID-19 in Madrid.
Article in Haemophilia : the official journal of the World Federation of Hemophilia, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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The trial behind it
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Who cites it
10 citing papers in PubMed, 19 citations in OpenAlex.
- Impact of COVID-19 on professionals and patients in haemophilia care - The perspective from the EAHAD Psychosocial Working Group.Haemophilia : the official journal of the World Federation of Hemophilia · 2023Article
- Outcomes of COVID-19 in Adult Males With Hemophilia A: A Propensity Score-Matched Analysis.Cureus · 2022Article
- COVID-19 associated coagulopathy: Mechanisms and host-directed treatment.The American journal of the medical sciences · 2022Review
- Addressing the impact of SARS-CoV-2 infection in persons with congenital bleeding disorders: The Italian MECCOVID-19 study.Haemophilia : the official journal of the World Federation of Hemophilia · 2021Article
- The Impact of the COVID-19 Pandemic on the Perception of Health and Treatment-Related Issues among Patients with Phenylketonuria in Poland-The Results of a National Online Survey.International journal of environmental research and public health · 2021Article
- Do congenital bleeding disorders have a protective effect against COVID-19? A prospective study.International journal of laboratory hematology · 2021Article
- Impact of COVID-19 Pandemic on Patients with Immune Thrombocytopaenia.Medicina (Kaunas, Lithuania) · 2021Article
- Practical Recommendations for Treatment of Dental Patients with Congenital Bleeding Disorders during the Covid-19 Pandemic: A Narrative Review.International journal of environmental research and public health · 2020Review
- Congenital Bleeding Disorders amid the COVID-19 pandemic: Open questions and recommendations.Acta bio-medica : Atenei Parmensis · 2020Review
- Registry of patients with congenital bleeding disorders and COVID-19 in Madrid.Haemophilia : the official journal of the World Federation of Hemophilia · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
18 authors at 3 institutions in 2 countries.
Funding
Abstract
introductionWe present the first registry of patients with congenital bleeding disorders and COVID-19. The study has been carried out in the Community of Madrid, which has the highest number of cases in Spain. The objective is to understand the incidence of COVID-19, the course of the disease if it occurs and the psychosocial and occupational impact on this population.
methodsWe included 345 patients (246 of haemophilia, 69 of von Willebrand Disease, two rare bleeding disorders and 28 carriers of haemophilia). A telephone survey was used to collect the data.
resultsForty-two patients presented symptoms suggestive of infection by COVID-19, and in six cases, the disease was confirmed by RT-PCR. The cumulative incidence of our series was 1.73%. It is worth noting the complexity of the management of COVID-19 in two patients on prophylaxis with non-factor replacement therapy. Adherence to the prescribed treatment was maintained by 95.5% of patients. Although 94% were independent for daily living activities, 42.4% had a recognized disability and 58% required assistance, provided by the Madrid Haemophilia Association (Ashemadrid) in 75% of cases. Only 4.4% of consultations were held in person.
conclusionsPatients with congenital bleeding disorders infected with SARS-CoV-2 presented a mild course of the disease that did not require admission. Their identification and treatment by a specialist team from a Haemophilia Treatment Center are essential to make a correct assessment of the risk of haemorrhage/thrombosis. COVID-19 had a major impact on the psychosocial aspects of these patients which must be remedied with recovery plans.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.