ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2020
Known-groups validity and responsiveness to change of the Patient Experience with Treatment and Self-management (PETS vs. 2.0): a patient-reported measure of treatment burden.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
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Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it, 26 citations in OpenAlex.
- Patient-reported outcome measures for patients with chronic comorbidities: a systematic review of psychometric properties.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Pooled it
- Treatment burden for people experiencing homelessness with a recent non-fatal overdose: a questionnaire study.The British journal of general practice : the journal of the Royal College of General Practitioners · 2023Trial
- BACK-on-LINEEuropean journal of pain (London, England) · 2026Article
- The Treatment Burden for Multimorbidity Scale: A Development and Psychometric Validation Study.Nursing & health sciences · 2026Article
- Disparities in treatment burden in Peru among people with multiple long-term conditions by geography and healthcare facility: A cross-sectional study.PLOS global public health · 2026Article
- Evaluating Treatment Burden in Patients with Complex Needs Receiving a Transition of Care Intervention: A Rapid Qualitative Analysis.Clinical nursing research · 2026Article
- The complex relationship between treatment burden of multimorbidity and self-care in multimorbid patients with hypertension.BMC primary care · 2025Article
- Development of a digital platform for nursing monitoring of patients with chronic kidney failure.International urology and nephrology · 2025Article
- Treatment burden in multimorbidity: an integrative review.BMC primary care · 2024Review
- The Chinese version of patient experience with treatment and self-management (PETS vs. 2.0): translation and validation in patients with multimorbidity in primary care in Hong Kong.Journal of patient-reported outcomes · 2024Article
- Development and acceptability of PETS-Now, an electronic point-of-care tool to monitor treatment burden in patients with multiple chronic conditions: a multi-method study.BMC primary care · 2024Article
- Investigating psychological mechanisms linking pain severity to depression symptoms in women cancer survivors at a cancer center with a rural catchment area.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Trajectories of Treatment Burden Among Primary Care Patients with Long-Term Conditions in Southern China: A Latent Class Growth Analysis.Risk management and healthcare policy · 2024Article
- A Single-Center Retrospective Evaluation of Decision-Making and Factors Motivating Hand Transplant Candidates.Progress in transplantation (Aliso Viejo, Calif.) · 2023Article
- Scoping review of measures of treatment burden in patients with multimorbidity: advancements and current gaps.Journal of clinical epidemiology · 2023Article
- Understanding the treatment burden of people with chronic conditions in Kenya: A cross-sectional analysis using the Patient Experience with Treatment and Self-Management (PETS) questionnaire.PLOS global public health · 2023Article
- Reducing the Burden of Treatment: Addressing How Our Patients Feel About What We Ask of Them: A "Less Is More" Perspective.Mayo Clinic proceedings · 2022Article
- Longitudinal trajectories of treatment burden: A prospective survey study of adults living with multiple chronic conditions in the midwestern United States.Journal of multimorbidity and comorbidity · 2022Article
- Deriving and validating a brief measure of treatment burden to assess person-centered healthcare quality in primary care: a multi-method study.BMC family practice · 2020Article
- Confirmatory Factor Analyses and Differential Item Functioning of the Patient Experience with Treatment and Self-Management (PETS vs. 2.0): A Measure of Treatment Burden.Patient related outcome measures · 2020Article
Corrections and comments
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Authors and funding
4 authors at 3 institutions in 1 country.
Funding
Abstract
purposeThe purpose of this study was to test the known-groups validity and responsiveness to change of the Patient Experience with Treatment and Self-management (PETS, vs. 2.0), a measure of treatment burden.
methodsThe PETS and other standard measures were mailed at baseline and 12-month follow-up to adults living with multiple chronic conditions in southeast Minnesota (USA). A sample of 365 people (mean age = 62.1 years) completed both surveys. Baseline, 12-month, and changes in PETS burden scores were examined. Clinical anchors used to test validity included number of diagnoses (2-4 vs. 5+), mental health diagnosis (yes/no), medication adherence and health literacy (suboptimal/optimal), and changes in self-efficacy, global physical, and global mental health (worsening/improving). Independent-samples t-tests were used to compare scores.
resultsPETS scales showed good internal consistency (αs ≥ 0.80). There were few differences across number of diagnoses, but having a mental health diagnosis was associated with higher baseline PETS burden scores (Ps < .05). Suboptimal medication adherence and health literacy over time were associated with worse 12-month PETS burden scores (Ps < .05). Compared with improvements, declines over time in self-efficacy, global physical health, and global mental health were each associated with worsening change scores on PETS impact summary, medical expenses, and bother due to medication reliance and medication side effects (Ps < .05).
conclusionAmong multi-morbid adults, the PETS demonstrated evidence of known-groups validity and responsiveness to change across both objective (e.g., mental health diagnoses) and subjective anchors (e.g., changes in self-efficacy, global physical, and global mental health).
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.