ArticleThe International journal of social psychiatry2021
Carer subjective burden after first-episode psychosis: Types and predictors. A multilevel statistical approach.
Article in The International journal of social psychiatry, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.
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Who cites it
5 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Digital Health Interventions for Informal Family Caregivers of People With First-Episode Psychosis: Systematic Review on User Experience and Effectiveness.JMIR mental health · 2024Pooled it
- Caregiving profiles in first episode psychosis.Social psychiatry and psychiatric epidemiology · 2026Article
- CareVR, a Virtual Reality assisted communication training programme to support informal carers of people with psychosis: a feasibility study.BMC psychiatry · 2026Article
- Partners' experiences of their loved ones' trauma and PTSD: An ongoing journey of loss and gain.PloS one · 2024Article
- Family functioning and personal growth in Italian caregivers living with a family member affected by schizophrenia: Results of an add-on study of the Italian network for research on psychoses.Frontiers in psychiatry · 2022Article
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Authors and funding
12 authors.
Funding
Abstract
backgroundCarer burden at first-episode psychosis is common and adds to the multiple other psychiatric and psychological problems that beset new carers; yet, knowledge of the factors that predict carer burden is limited.
aimThis study sought to investigate the types and predictors of carer burden at first-episode psychosis in the largest, most ethnically diverse and comprehensively characterised sample to date.
methodThis study involved a cross-sectional survey of carers of people with first-episode psychosis presenting to Harrow and Hillingdon Early Intervention in Psychosis service between 2011 and 2017. Carers completed self-report measures assessing their illness beliefs, coping styles and caregiving experiences (i.e. burden). Thirty carer and patient sociodemographic and clinical factors were also collected. Mixed effects linear regression modelling was conducted to account for clustering of carers by patient, with carer burden (and its 8 subtypes) investigated as dependent variables.
resultsThe sample included data on 254 carers (aged 18-74 years) and 198 patients (aged 14-36 years). Regression modelling identified 35 significant predictors of carer burden and its subtypes at first-episode psychosis. Higher total burden was independently predicted by perceiving greater negative consequences of the illness for the patient (B = .014,
conclusionFindings can be used to inform the identification of carers 'at-risk' of experiencing burden and highlight potential targets for theraputic intervention to lower carer buden.
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