ArticleBrazilian journal of physical therapy
Comparing the experience of individuals with primary and secondary lymphoedema: A qualitative study.
Article in Brazilian journal of physical therapy. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
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Who cites it
3 citing papers in PubMed.
- "Do I buy my children shoes, or do I get a compression garment for my lymphoedema?" Australian stakeholder perspectives on cancer-related lymphoedema care.Journal of cancer survivorship : research and practice · 2026Article
- A Prospective Study of the Impact of Lymphatic Venous Anastomosis as a Treatment for Lymphedema.Plastic and reconstructive surgery. Global open · 2025Article
- Breast cancer survivors suffering from lymphedema: What really do affect to corporeality/body image? A qualitative study.Breast cancer research : BCR · 2024Article
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4 authors.
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Abstract
backgroundLymphoedema is a chronic condition that has significant detrimental impact on patients' quality of life. Secondary lymphoedema often results from anti-tumour treatment, in contrast to primary lymphoedema which is the result of genetic abnormalities that leads to an abnormal development of the lymphatic system.
objectiveTo describe and compare the experience of individuals with primary and secondary lymphoedema.
methodsA total of 19 patients (mean ± standard deviation age: 56.7 ± 16.2 years), 8 with primary and 11 with secondary lymphoedema, participated in this qualitative phenomenological study. Purposeful sampling method was applied. We recruited participants from specialised lymphoedema units of two physical therapy clinics and the Lymphoedema Patient Association in Spain. Data collection methods included unstructured and semi-structured interviews. An inductive thematic analysis was used.
resultsThe findings suggest differences between the experience of living with primary or secondary lymphoedema. Also, those with lower extremity lymphoedema have more pain, fatigue, and functional limitations. Three primary themes emerged: "Emotional challenge", "Adapting your life to a new situation," and "lymphoedema management".
conclusionsThe experience of living with lymphoedema involves aspects of fear, suffering, coping, and management of the disease and differs between secondary and primary causes. However, it seems to be more dependent on its location than its cause.
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