ArticleInternational journal of environmental research and public health2020
Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study.
Article in International journal of environmental research and public health, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.
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Who cites it
5 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Risk and Protective Factors for PTSD in Caregivers of Adult Patients with Severe Medical Illnesses: A Systematic Review.International journal of environmental research and public health · 2020Pooled it
- More than "hematology": a qualitative study on the experience of hematologists treating people with blood cancer in Greece.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Person-centred care in oncological home services: a scoping review of patients' and caregivers' experience and needs.BMC health services research · 2025Article
- How do work in oncology unit nurses experience hospice care provision in China? A descriptive phenomenological study.BMC palliative care · 2024Article
- Goal of a "Good Death" in End-of-Life Care for Patients with Hematologic Malignancies-Are We Close?Current hematologic malignancy reports · 2021Review
Corrections and comments
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Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The role of caregivers in homecare settings is relevant to the patient's wellbeing and quality of life. This phenomenon is well described in the literature for the oncological setting but not specifically for that of hematological malignancies. The aim of this study was to explore the experience of primary caregivers of patients with hematological malignancies within home care. We conducted a phenomenological study based on interviews with 17 primary caregivers of hematological patients. Analysis of the contents led to the identification of five main themes. Perhaps, the innovative aspects of this study can be summarized in three points: This service was demonstrated to fulfil the ethical aspects of providing the patient with a dignified accompaniment to the end of life. Secondly, the efficiency of the service and the benefit are directly dependent on the caregivers' wellbeing, so knowledge of the dynamics and emotions involved can lead to the development and implementation of programs for hematological malignancies. Lastly, a collaborative caregivers-professionals relationship can improve a sense of accomplishment for all parties involved, lessening the family's frustration related to not having done their best. Home care brings significant benefits for both the patient and the caregivers and fulfils the ethical obligation of providing the patient dignified end-of-life care.
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