ArticleBMC palliative care2020
Barriers to advance care planning: a qualitative study of seriously ill Chinese patients and their families.
Article in BMC palliative care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers, 4 of them syntheses that pooled it.
What it found
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Who cites it
33 citing papers in PubMed, 4 syntheses or guidelines pooled it, 75 citations in OpenAlex.
- Barriers to and readiness for advance care planning: a systematic review and meta-analysis of quantitative and qualitative evidence.BMC palliative care · 2025Pooled it
- Decision-making in palliative care: patient and family caregiver concordance and discordance-systematic review and narrative synthesis.BMJ supportive & palliative care · 2023Pooled it
- How does ethnicity affect presence of advance care planning in care records for individuals with advanced disease? A mixed-methods systematic review.BMC palliative care · 2023Pooled it
- Asian patients' perspectives on advance care planning: A mixed-method systematic review and conceptual framework.Palliative medicine · 2021Pooled it
- Effect of motivational interviewing to promote advance care planning among palliative care patients in ambulatory care setting: a randomized controlled trial.BMC palliative care · 2025Trial
- Experiences of Older Adults with Frailty Not Completing an Advance Directive: A Qualitative Study of ACP Conversations.International journal of environmental research and public health · 2022Trial
- Oncology physicians' and nurses' perspectives on barriers to advanced care planning for patients with cancer in Oman: A cross-sectional study.International journal of nursing sciences · 2026Article
- Latent profiles of advance care planning self-efficacy among clinical nurses in China: a cross-sectional study.BMC nursing · 2026Article
- Evaluating a motivational interviewing-based communication program for nurses in advance care planning: a quasi-experimental study.BMC palliative care · 2026Article
- Latent profiles of advance care planning engagement among Chinese older adults.BMC public health · 2026Article
- Understanding death wishes in later life: a narrative review.Frontiers in psychiatry · 2026Review
- Factors influencing the completion of advance directives in cancer patients: a descriptive survey.BMC palliative care · 2025Article
- Navigating the path to planned endings: understanding Chinese older adults' engagement with advance care planning through constructivist grounded theory.BMC medical ethics · 2025Article
- From Fear to Hope: Understanding Preparatory and Anticipatory Grief in Women with Cancer-A Public Health Approach to Integrating Screening, Compassionate Communication, and Psychological Support Strategies.Journal of clinical medicine · 2025Review
- Cross-cultural adaptation and validation of the Chinese version of the quality of communication questionnaire.BMC palliative care · 2025Article
- Advanced Care Plan Among Older Chinese in Residential Aged Care: A Retrospective Review.Journal of transcultural nursing : official journal of the Transcultural Nursing Society · 2025Article
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- A cross-sectional study on advance care planning documentation attitudes during national advance care planning week in a South-East Asian country.BMC palliative care · 2024Article
- Preparedness for Caregiving Role and Telehealth Use to Provide Informal Palliative Home Care in Portugal: A Qualitative Study.Healthcare (Basel, Switzerland) · 2024Article
Corrections and comments
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Authors and funding
11 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAdvance care planning (ACP) facilitates identification and documentation of patients' treatment preferences. Its goal aligns with that of palliative care - optimizing quality of life of seriously ill patients. However, concepts of ACP and palliative care remain poorly recognized in Chinese population. This study aims at exploring barriers to ACP from perspective of seriously ill patients and their family caregivers.
methodsThis is a qualitative study conducted in a Palliative Day Care Centre of Hong Kong between October 2016 and July 2017. We carried out focus groups and individual interviews for the seriously ill patients and their family caregivers. A semi-structured interview guide was used to explore participants' experiences and attitudes about ACP. Qualitative content analysis was adopted to analyze both manifest content and latent content.
resultsA total of 17 patients and 13 family caregivers participated in our study. The qualitative analysis identified four barriers to ACP: 1) limited patients' participation in autonomous decision making, 2) cognitive and emotional barriers to discussion, 3) lack of readiness and awareness of early discussion, and 4) unprepared healthcare professionals and healthcare system.
conclusionsParticipations of seriously ill patients, family caregivers and healthcare workers in ACP initiation are lacking respectively. A series of interventions are necessary to resolve the barriers.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.