SynthesisHealth expectations : an international journal of public participation in health care and health policy2021
No evidence synthesis about me without me: Involving young people in the conduct and dissemination of a complex evidence synthesis.
Synthesis in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 9 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 9 syntheses or guidelines pooled it, 34 citations in OpenAlex.
- Barriers and Facilitators to The Involvement of Under-Represented Children and Young People (aged 8-25) in Mental Health Research - a Systematic Review.Clinical child and family psychology review · 2025Pooled it
- Deaf children's experiences of hearing in everyday life: a systematic review.Journal of deaf studies and deaf education · 2025Pooled it
- Involving adolescents in evidence syntheses: an umbrella review.Systematic reviews · 2025Pooled it
- Systematic Review: Patient and Public Involvement of Children and Young People in Mental Health Research.Clinical child and family psychology review · 2024Pooled it
- The benefits, challenges, and best practice for patient and public involvement in evidence synthesis: A systematic review and thematic synthesis.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- Youth engagement in mental health research: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- Adapting a codesign process with young people to prioritize outcomes for a systematic review of interventions to prevent self-harm and suicide.Health expectations : an international journal of public participation in health care and health policy · 2022Pooled it
- Co-Production within Child and Adolescent Mental Health: A Systematic Review.International journal of environmental research and public health · 2021Pooled it
- No evidence synthesis about me without me: Involving young people in the conduct and dissemination of a complex evidence synthesis.Health expectations : an international journal of public participation in health care and health policy · 2021Pooled it
- Working with a youth mental health apprenticeship scheme to coproduce evidence synthesis: The youth mental health evidence synthesis hub.JCPP advances · 2026Article
- The Many Faces of Engagement: A Scoping Review of Paediatric Patient and Family Engagement in Clinical Care, Education and Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- "To make a positive difference": diverse youth perspectives on getting involved in mental health research.Research involvement and engagement · 2026Article
- Methods of Engaging Interest-Holders in Healthcare Evidence Syntheses: A Scoping Review.Cochrane evidence synthesis and methods · 2026Review
- Young people's experiences and strategies for improving their awareness and access to mental health and substance use health services.BMC public health · 2025Article
- Public Involvement in Complex Theorising: A Co-Produced Logic Model of the Role of Context in Shaping Child Health.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Emerging practice in mental health patient and public involvement research advisory groups: a narrative review.BMC psychiatry · 2025Review
- Working with children and young people in research: Supportive practices and pathways to impact.Journal of child health care : for professionals working with children in the hospital and community · 2025Review
- Protocol for an umbrella review of the state-of-science on public and patient involvement in health and social care research with children, young people and families.HRB open research · 2025Article
- Anything goes for participant, patient and public involvement in youth mental health research.JCPP advances · 2024Article
- Benefits, barriers and recommendations for youth engagement in health research: combining evidence-based and youth perspectives.Research involvement and engagement · 2024Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 2 institutions in 1 country.
Funding
Abstract
objectivesTo describe and reflect on the methods and influence of involvement of young people with lived experience within a complex evidence synthesis. STUDY DESIGN AND
settingLinked syntheses of quantitative and qualitative systematic reviews of evidence about interventions to improve the mental health of children and young people (CYP) with long-term physical conditions (LTCs).
methodsInvolvement was led by an experienced patient and public involvement in research lead. Young people with long-term physical conditions and mental health issues were invited to join a study-specific Children and Young People's Advisory Group (CYPAG). The CYPAG met face to face on four occasions during the project with individuals continuing to contribute to dissemination following report submission.
resultsEight young people joined the CYPAG. Their views and experiences informed (a) a systematic review evaluating the effectiveness of interventions intended to improve the mental health of CYP with LTCs, (b) a systematic review exploring the experiences of interventions intended to improve the mental well-being of CYP with LTCs and (c) an overarching synthesis. The CYPAG greatly contributed to the team's understanding and appreciation of the wider context of the research. The young people found the experience of involvement empowering and felt they would use the knowledge they had gained about the research process in the future.
conclusionCreating an environment that enabled meaningful engagement between the research team and the CYPAG had a beneficial influence on the young people themselves, as well as on the review process and the interpretation, presentation and dissemination of findings.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.