Observational studyArchives of disease in childhood. Fetal and neonatal edition2020
Parent experience of caring for neonates with seizures.
Observational study in Archives of disease in childhood. Fetal and neonatal edition, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed, 35 citations in OpenAlex.
- Optimistic vs Pessimistic Message Framing in Communicating Prognosis to Parents of Very Preterm Infants: The COPE Randomized Clinical Trial.JAMA network open · 2024Trial
- Well-being in parents of infants with neurological conditions: from birth to 6 months after discharge.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Early ultrasound-based assessment of preterm white matter injury: association with MRI and neurological outcomes.Pediatric radiology · 2026Article
- Profiles and Predictors of Neurodevelopmental Outcome at 5-6 Years in Children With a History of Acute Provoked Neonatal Seizures.Annals of neurology · 2026Article
- The Hospitalisation Experience and Distress Among Jewish and Bedouin Parents of Hospitalised Children in Israel.Acta paediatrica (Oslo, Norway : 1992) · 2025Article
- Synergy in Child Neurology: Science, Collaboration, and Leadership - The 2024 Hower Award Lecture.Annals of the Child Neurology Society · 2025Article
- Parent and Family Well-Being and Associated Risk Factors as Children with Neonatal Seizures Reach Preschool and School-Age: A Longitudinal Cohort Study.Journal of pediatrics. Clinical practice · 2025Article
- Uncertainties in the NICU: a scoping review to inform a tailored taxonomy.Journal of perinatology : official journal of the California Perinatal Association · 2025Article
- Evaluating stress and it associated factors in mothers of preterm infants in NICU: a cross-sectional study.Frontiers in global women's health · 2025Article
- What Influences Maternal Stress in The NICU Among Mothers of Preterm Infants?Journal of multidisciplinary healthcare · 2025Article
- Life After Neonatal Seizures: Characterizing the Longitudinal Parent Experience.Pediatric neurology · 2024Observational
- A Novel Question Prompt List for Parents of Neonates With Seizures.Pediatric neurology · 2024Article
- Families as partners in neonatal neuro-critical care programs.Pediatric research · 2024Review
- Neonatal Seizures: New Evidence, Classification, and Guidelines.Epilepsy currents · 2024Review
- Parent Experience of Hypoxic-Ischemic Encephalopathy and Hypothermia: A Call for Trauma Informed Care.American journal of perinatology · 2024Article
- Feeding and developmental outcomes after neonatal seizures-A prospective observational study.Annals of the Child Neurology Society · 2023Article
- Seminars in Fetal & neonatal medicine: Palliative and end of life care in the NICU.Seminars in fetal & neonatal medicine · 2023Review
- The ALIGN Framework: A Parent-Informed Approach to Prognostic Communication for Infants With Neurologic Conditions.Neurology · 2023Article
- Neonatal neuropalliative care.Handbook of clinical neurology · 2023Review
- Prognostic Discussion for Infants with Neurologic Conditions: Qualitative Analysis of Family Conferences.Annals of neurology · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
18 authors at 10 institutions in 1 country.
Funding
Abstract
objectiveNeonates with seizures have a high risk of mortality and neurological morbidity. We aimed to describe the experience of parents caring for neonates with seizures.
designThis prospective, observational and multicentre (
results144 parents completed the open-ended questions (732 total comments). Four themes were identified.
conclusionsParents of neonates with seizures face challenges as they adapt to and find meaning in their role as a parent of a child with medical needs. Future interventions should target facilitating parent involvement in clinical and developmental care, improving team consensus and reducing the burden associated with prognostic uncertainty.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.