Evidence map›Paper›PMID 32499230›Full record

ArticleClinical journal of the American Society of Nephrology : CJASN2020

Dialysis Regret: Prevalence and Correlates.

Fahad Saeed, Susan A Ladwig, Ronald M Epstein, Rebeca D Monk, Paul R Duberstein

Registry-linked trialAbstract read
In one paragraph

Article in Clinical journal of the American Society of Nephrology : CJASN, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06243068 (Improving Shared Decision-Making and Access to Non-Dialytic Treatment for People With Kidney Disease), which is not on this map. Cited by 40 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
40citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06243068 naenrolling by invitationnot on this mapstarted 2024, after this paper: background citation

Improving Shared Decision-Making and Access to Non-Dialytic Treatment for People With Kidney Disease (The ExPAND Trial)

TypeinterventionalSponsorGeorge Washington UniversityRan2024 to 2028Enrolled3,000ConditionsChronic Kidney DiseaseArmsEducate and Engage, Educate and Engage Plus Kidney Supportive Care Program
3 · Its place in the literature

Who cites it

40 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Trial
  4. Ten tips for the first hemodialysis sessions.Clinical kidney journal · 2026
    Review
  5. Article
  6. Article
  7. Article
  8. Review
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  10. Obliged to fight? Patient moral processes in the face of poor prognosis cancer.Health psychology : official journal of the Division of Health Psychology, American Psychological Association · 2025
    Article
  11. Article
  12. Article
  13. Article
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  15. Article
  16. Observational
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  20. Observational
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Fahad SaeedDepartment of Medicine, School of Public Health, Division of Nephrology, University of Rochester School of Medicine and Dentistry, Rochester, New York.ORCID 0000-0002-5987-2255
Susan A LadwigDivision of Palliative Care, University of Rochester School of Medicine and Dentistry, Rochester, New York.
Ronald M EpsteinDivision of Palliative Care, University of Rochester School of Medicine and Dentistry, Rochester, New York.ORCID 0000-0002-3564-9163
Rebeca D MonkDepartment of Medicine, School of Public Health, Division of Nephrology, University of Rochester School of Medicine and Dentistry, Rochester, New York.
Paul R DubersteinDepartment of Health Behavior, Society and Policy, Rutgers School of Public Health, Piscataway, New Jersey.

Funding

Institutional Career Development CoreKL2TR001999 · NCATS · UNIVERSITY OF ROCHESTER · PI XIAO, JIN · 2016 to 2024
$5.2M
NCATS NIH HHS KL2 TR001999
6 · The paper itself

Abstract

BACKGROUND AND

objectivesAlthough some patients regret the decision to start dialysis, modifiable factors associated with regret have rarely been studied. We aimed to identify factors associated with patients' regret to initiate dialysis. DESIGN, SETTING, PARTICIPANTS, & MEASUREMENTS: A 41-item questionnaire was administered to adult patients receiving maintenance dialysis in seven dialysis units located in Cleveland, Ohio, and its suburbs. Of the 450 patients asked to participate in the study, 423 agreed and 397 provided data on decisional regret. We used multivariable logistic regression to identify predictors of regret, which was assessed using a single item, "Do you regret your decision to start dialysis?" We report adjusted odd ratios (ORs) and 95% confidence intervals (95% CIs) for the following candidate predictors: knowledge of CKD, attitudes toward CKD treatment, and preference for end-of-life care.

resultsEighty-two of 397 respondents (21%) reported decisional regret. There were no significant demographic correlates of regret. Regret was more common when patients reported choosing dialysis to please doctors or family members (OR, 2.34; 95% CI, 1.27 to 4.31;

conclusionsDialysis regret was common in this sample. Demographic factors (age, sex, marital status, race, or educational attainment) were not significantly associated with regret, but modifiable care processes were. PODCAST: This article contains a podcast at https://www.asn-online.org/media/podcast/CJASN/2020_06_09_CJN13781119.mp3.

Indexed as

EmotionsPatient PreferenceAdultAgedAged, 80 and overConservative TreatmentDecision MakingFamily RelationsFemaleHealth Knowledge, Attitudes, PracticeHumansLiving WillsMaleMiddle AgedPhysician-Patient RelationsPrognosisagedattitudedecisional regretdecision makingemotionslife expectancyliving willslogistic modelsmarital statusodds ratioprognosisregretrenal dialysisrenal insufficiency, chronicshared dialysis decision-makingsurveys and questionnairesterminal care

Identifiers

PMID32499230
PMCPMC7341783

What OpenQuestion holds

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Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.