Evidence map›Paper›PMID 32493367›Full record

Observational studyBMC health services research2020

Healthcare system inputs and patient-reported outcomes: a study in adults with congenital heart defect from 15 countries.

Liesbet Van Bulck, Eva Goossens, Koen Luyckx, Silke Apers, Erwin Oechslin, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Chun-Wei Lu and 20 more

Registry-linked trialAbstract readObservational Study
PubMed Full text at PMC Publisher
In one paragraph

Observational study in BMC health services research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02150603 (Assessment of Patterns of Patient-reported Outcomes in Adults With Congenital Heart Disease - International Study), which is not on this map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT02150603 completednot on this map

Assessment of Patterns of Patient-reported Outcomes in Adults With Congenital Heart Disease - International Study

TypeobservationalSponsorPhilip MoonsRan2013 to 2015Enrolled4,000ConditionsHeart Defects, Congenital
3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Review
  2. Article
  3. Mental health in adult congenital heart disease.International journal of cardiology. Congenital heart disease · 2023
    Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

30 authors.

Liesbet Van BulckKU Leuven Department of Public Health and Primary Care, KU Leuven - University of Leuven, Kapucijnenvoer 35, Box 7001, B-3000, Leuven, Belgium.
Eva GoossensKU Leuven Department of Public Health and Primary Care, KU Leuven - University of Leuven, Kapucijnenvoer 35, Box 7001, B-3000, Leuven, Belgium.
Koen LuyckxKU Leuven School Psychology and Development in Context, KU Leuven - University of Leuven, Leuven, Belgium.
Silke ApersDepartment of Gynaecology and Obstetrics, University Hospitals Leuven, Leuven, Belgium.
Erwin OechslinToronto Congenital Cardiac Centre for Adults, Peter Munk Cardiac Centre, University Health Network, University of Toronto, Toronto, Canada.
Corina ThometCenter for Congenital Heart Disease, Inselspital - Bern University Hospital, University of Bern, Bern, Switzerland.
Werner BudtsDivision of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, Belgium.
Junko EnomotoDepartment of Adult Congenital Heart Disease, Chiba Cardiovascular Center, Chiba, Japan.
Maayke A SlumanDepartment of Cardiology, Academic Medical Center, Amsterdam, the Netherlands.
Chun-Wei LuNational Taiwan University Hospital and Medical College, National Taiwan University, Taipei, Taiwan.
Jamie L JacksonCenter for Biobehavioral Health, Nationwide Children's Hospital, Columbus, OH, USA.
Paul KhairyAdult Congenital Heart Center, Montreal Heart Institute, Université de Montréal, Montreal, Canada.
Stephen C CookAdult Congenital Heart Disease Center, Helen DeVos Children's Hospital, Grand Rapids, MI, USA.
Shanthi ChidambarathanuPediatric Cardiology, Frontier Lifeline Hospital (Dr. K. M. Cherian Heart Foundation), Chennai, India.
Luis AldayDivision of Cardiology, Hospital de Niños, Córdoba, Argentina.
Katrine EriksenAdult Congenital Heart Disease Center, Oslo University Hospital - Rikshospitalet, Oslo, Norway.
Mikael DellborgCentre for Person-Centred Care (GPCC), University of Gothenburg, Gothenburg, Sweden.
Malin BerghammerCentre for Person-Centred Care (GPCC), University of Gothenburg, Gothenburg, Sweden.
Bengt JohanssonDepartment of Public Health and Clinical Medicine, Umeå University, Umeå, Sweden.
Andrew S MackieDivision of Cardiology, Stollery Children's Hospital, University of Alberta, Edmonton, Canada.
Samuel MenahemMonash Heart, Monash Medical Centre, Monash University, Melbourne, Australia.
Maryanne CaruanaDepartment of Cardiology, Mater Dei Hospital, Birkirkara Bypass, Msida, Malta.
Gruschen VeldtmanAdult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
Alexandra SoufiDepartment of Congenital Heart Disease, Louis Pradel Hospital, Hospices civils de Lyon, Lyon, France.
Susan M FernandesAdult Congenital Heart Disease Program at Stanford, Lucile Packard Children's Hospital and Stanford Health Care, Palo Alto, CA, USA.
Kamila WhiteAdult Congenital Heart Disease Center, Washington University and Barnes Jewish Heart & Vascular Center, University of Missouri, Saint Louis, MO, USA.
Edward CallusClinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy.
Shelby KuttyAdult Congenital Heart Disease Center University of Nebraska Medical Center/ Children's Hospital and Medical Center, Omaha, NE, USA.
Philip MoonsKU Leuven Department of Public Health and Primary Care, KU Leuven - University of Leuven, Kapucijnenvoer 35, Box 7001, B-3000, Leuven, Belgium. philip.moons@kuleuven.be.ORCID http://orcid.org/0000-0002-8609-4516
APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD)

Funding

Cardiac Children's Foundation Taiwan CCF2013_02Hjärt-Lungfonden 20130607Onderzoeksraad, KU Leuven 0T/11/033
6 · The paper itself

Abstract

backgroundThe relationship between healthcare system inputs (e.g., human resources and infrastructure) and mortality has been extensively studied. However, the association between healthcare system inputs and patient-reported outcomes remains unclear. Hence, we explored the predictive value of human resources and infrastructures of the countries' healthcare system on patient-reported outcomes in adults with congenital heart disease.

methodsThis cross-sectional study included 3588 patients with congenital heart disease (median age = 31y; IQR = 16.0; 52% women; 26% simple, 49% moderate, and 25% complex defects) from 15 countries. The following patient-reported outcomes were measured: perceived physical and mental health, psychological distress, health behaviors, and quality of life. The assessed inputs of the healthcare system were: (i) human resources (i.e., density of physicians and nurses, both per 1000 people) and (ii) infrastructure (i.e., density of hospital beds per 10,000 people). Univariable, multivariable, and sensitivity analyses using general linear mixed models were conducted, adjusting for patient-specific variables and unmeasured country differences.

resultsSensitivity analyses showed that higher density of physicians was significantly associated with better self-reported physical and mental health, less psychological distress, and better quality of life. A greater number of nurses was significantly associated with better self-reported physical health, less psychological distress, and less risky health behavior. No associations between a higher density of hospital beds and patient-reported outcomes were observed.

conclusionsThis explorative study suggests that density of human resources for health, measured on country level, are associated with patient-reported outcomes in adults with congenital heart disease. More research needs to be conducted before firm conclusions about the relationships observed can be drawn.

trial registrationClinicalTrials.gov: NCT02150603. Registered 30 May 2014.

Indexed as

Patient Reported Outcome MeasuresAdultCross-Sectional StudiesDelivery of Health CareFemaleGlobal HealthHealth WorkforceHeart Defects, CongenitalHumansMaleCongenital Heart DefectsHealthcare workforceHealth ResourcesPatient Reported Outcome MeasuresQuality of lifeStaffing

Identifiers

PMID32493367
PMCPMC7268498

What OpenQuestion holds

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LicenceCC BY
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.