ArticleBMC palliative care2020
Spirituality alleviates the burden on family members caring for patients receiving palliative care exclusively.
Article in BMC palliative care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 2 of them syntheses that pooled it.
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Who cites it
13 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Caregivers' Perceptions of End-of-Life Care in Brazil: A Qualitative Systematic Review.Revista brasileira de enfermagem · 2026Pooled it
- [Psychological impact on primary caregivers of family members undergoing palliative treatment a review on quality of life]Revista de la Facultad de Ciencias Medicas (Cordoba, Argentina) · 2024Pooled it
- Effects of Spiritual Well-Being on Caregiver Burden of Parents of Children with Tracheostomy in Türkiye: The Mediating Role of Psychological Resilience.Journal of religion and health · 2025Observational
- Exploring the role of perceived social support, and spiritual well-being in predicting the family Caregiving burden among the parents of disabled children.BMC public health · 2025Article
- "In God We Trust": An Exploratory Study of the Associations Between Religiosity and the Caregiving Experiences of Parents of Children with Rare Diseases in Poland.Journal of religion and health · 2024Article
- Care burden and the predictive role of spiritual well-being and religious coping: A cross sectional study among Iranian family caregivers of patients with stroke.Health science reports · 2024Article
- Fear of cancer recurrence and associated factors in family caregivers of patients with hematologic malignancy receiving chemotherapy: A latent profile analysis.Asia-Pacific journal of oncology nursing · 2024Article
- Predictors of emotional intelligence among family caregivers of cancer patients: A cross-sectional study.Cancer reports (Hoboken, N.J.) · 2024Article
- Spiritual care from the perspective of family caregivers and nurses in palliative care: a qualitative study.BMC palliative care · 2023Article
- Spiritual Well-Being and Care Burden in Caregivers of Patients with Breast Cancer in Turkey.Journal of religion and health · 2023Article
- Examining the Rationale for Studying Psychedelic-Assisted Psychotherapy for the Treatment of Caregiver Distress.Psychedelic medicine (New Rochelle, N.Y.) · 2023Review
- Exploring Influence of Spiritual Well-being on Caregiver Burden in Head-and-Neck Malignancy: A Cross-sectional Study.Indian journal of palliative careArticle
- Spiritual Well-Being, and Caring Burden of Informal Caregivers of Stroke Patients.Iranian journal of nursing and midwifery researchArticle
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundSpirituality can give meaning to life, providing support and guidance in complex situations. Despite its importance in palliative care, the role of spirituality for family caregivers of patients under exclusive palliative care has not received enough attention in the literature. We aimed to address the correlation between spirituality and the emotional burden of family members of patients under exclusive palliative care.
methodsThis transversal study was conducted in a tertiary private teaching hospital, in São Paulo, Brazil. The study comprised family members of patients receiving palliative care exclusively. Only one caregiver who cared for the patient for at least 2 months was invited to participate. Family members answered the following questionnaires: WHOQOL spirituality, religiousness and personal beliefs (SRPB), Zarit Burden Interview (ZBI) and Self-Reporting Questionnaire (SRQ-20). They were excluded if patients were residing in a Long Stay Institution. Continuous variables were expressed by median and quartiles and analyzed with the Kruskal-Wallis test with Muller-Dunn post-test adjusted by Bonferroni or with the Mann-Whitney test for two groups. We used multivariable linear regression to identify independent predictors of caregiver burden.
resultsA total of 178 family members were interviewed in a median of 8 [4-13.25] days after patient admission. Almost 40% of families presented high score of burden. Faith and Meaning in Life were the facets that scored the highest, with a median of 4.50 [4.00-5.00] for both facets. There was an inverse correlation between Zarit score and all of the WHOQOL-SRPB facets, indicating that the lower the spirituality, the greater the emotional burden. Inner peace was the strongest protective factor associated with burden.
conclusionsPsycho-socio-spiritual interaction can improve the coping ability of family caregivers of patients under exclusive palliative care, addressing a critical gap in the provision of holistic palliative care services.
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