ArticleBMC public health2020
Formative research to design a culturally-appropriate cancer clinical trial education program to increase participation of African American and Latino communities.
Article in BMC public health, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
33 citing papers in PubMed, 43 citations in OpenAlex.
- Culturally Tailored Messages and Trial Registry Enrollment: A Randomized Clinical Trial.JAMA network open · 2024Trial
- Strengthening Indigenous community engagement in clinical research: a formative evaluation in Northern British Columbia.BMJ global health · 2026Article
- Practical approaches to inclusive recruitment practices in Parkinson's disease research.Journal of Parkinson's disease · 2026Article
- Clinical and translational science award hubs in learning health systems: development of the engine-drivetrain model.Journal of translational medicine · 2026Article
- Human papillomavirus (HPV) awareness, knowledge, and vaccine uptake among Cape Verdean immigrant parents in the United States: A community-based, cross-sectional study.Human vaccines & immunotherapeutics · 2025Article
- Misconceptions and knowledge gaps about HPV, cervical cancer, and HPV vaccination among central American immigrant parents in the United States.Human vaccines & immunotherapeutics · 2025Article
- Community engagement in the context of cancer: scoping review of definitions and measures to inform program-level analysis.Cancer causes & control : CCC · 2025Article
- Design of a cluster randomized multi-level intervention to decrease barriers to minority cancer patient referral and enrollment to cancer clinical trials: The ACT WONDERContemporary clinical trials · 2025Article
- Design and Implementation of a Community-Based Educational Program to Enhance Prostate Cancer Screening in Southeastern Puerto Rico.Healthcare (Basel, Switzerland) · 2025Article
- Formative Research to Develop DC-SIPS: A Multilevel Intervention to Reduce Sugary Drink Intake and Promote Water Intake Among Black Youth in Washington, DC.Journal of nutrition education and behavior · 2025Article
- A Formative Evaluation of Interventions to Enhance Clinical Trial Diversity Guided by the Socioecological Model.Cancers · 2025Article
- Social Ecological Influences on HPV Vaccination Among Cape Verdean Immigrants in the U. S.: A Qualitative Study.Vaccines · 2025Article
- Understanding Inclusion and Participation of People From Black African Diaspora Communities in Health and Care Research: A Realist Review.Health expectations : an international journal of public participation in health care and health policy · 2025Review
- Understanding Barriers and Facilitators for Ethnic Minority Groups to Audio Recording Recruitment Discussions in Clinical Trials: A Participatory Approach to Improving Informed Consent and Participation.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Promoting Racial Justice in Cancer Clinical Trials: Community Engaged Solutions for Bridging Gaps.Cancer medicine · 2025Article
- Exploring Brazilian Immigrant Mothers' Beliefs and Practices Regarding Their Preschool Children's Oral Health: A Qualitative Study Conducted in the United States.International journal of environmental research and public health · 2024Article
- On the Journey: a qualitative study of a community-based, client-centred eating disorder recovery group.Journal of eating disorders · 2024Article
- The Impact of Insider Researcher Trainees in Recruiting and Retaining Latinx in an Outdoor Health Promotion Research Study.Journal of racial and ethnic health disparities · 2024Article
- Community Informed Recruitment: A Promising Method to Enhance Clinical Trial Participation.Journal of pain and symptom management · 2023Review
- Factors affecting the recruitment of Hispanic/Latinx American older adults in clinical trials in the United States: A scoping review.Journal of the American Geriatrics Society · 2023Article
Corrections and comments
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Authors and funding
9 authors at 4 institutions in 1 country.
Funding
Abstract
backgroundAddressing knowledge deficiencies about cancer clinical trials and biospecimen donation can potentially improve participation among racial and ethnic minorities. This paper describes the formative research process used to design a culturally-appropriate cancer clinical trials education program for African American and Latino communities. We characterized community member feedback and its integration into the program.
methodsWe incorporated three engagement approaches into the formative research process to iteratively develop the program: including community-based organization (CBO) leaders as research team members, conducting focus groups and cognitive interviews with community members as reviewers/consultants, and interacting with two community advisory groups. An iterative-deductive approach was used to analyze focus group data. Qualitative data from advisory groups and community members were compiled and used to finalize the program.
resultsFocus group themes were: 1) Community Perspectives on Overall Presentation; 2) Community Opinions and Questions on the Content of the Presentation; 3) Culturally Specific Issues to Participation in Cancer Clinical Trials; 4) Barriers to Clinical Trial Participation; and 5) Perspectives of Community Health Educators. Feedback was documented during reviews by scientific experts and community members with suggestions to ensure cultural appropriateness using peripheral, evidential, linguistic, sociocultural strategies, and constituent-involving. The final program consisted of two versions (English and Spanish) of a culturally-appropriate slide presentation with speaker notes and videos representing community member and researcher testimonials.
conclusionsIncorporating multiple community engagement approaches into formative research processes can facilitate the inclusion of multiple community perspectives and enhance the cultural-appropriateness of the programs designed to promote cancer clinical trial participation among African Americans and Latinos.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.