Evidence map›Paper›PMID 32478589›Full record

ArticleDisability and rehabilitation2022

Community participation in youth with craniofacial microsomia.

Vera C Kaelin, Erin R Wallace, Martha M Werler, Brent R Collett, Mary A Khetani

Abstract read
In one paragraph

Article in Disability and rehabilitation, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

  1. Article
  2. Establishing an International Interdisciplinary Research Network in Craniofacial Microsomia: The CARE Program.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2024
    Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Psychosocial and Health-Related Experiences of Individuals With Microtia and Craniofacial Microsomia and Their Families: Narrative Review Over 2 Decades.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2023
    Review
  8. Article
  9. Article
  10. Caregiver Perspectives on School Participation Among Students With Craniofacial Microsomia.The American journal of occupational therapy : official publication of the American Occupational Therapy Association
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Vera C KaelinRehabilitation Sciences, College of Applied Health Sciences, University of Illinois at Chicago, Chicago, IL, USA.ORCID 0000-0003-1290-9441
Erin R WallaceCenter for Child Health, Behavior, and Development, Seattle Children's Research Institute, Seattle, WA, USA.
Martha M WerlerDepartment of Epidemiology, Boston University School of Public Health, Boston, MA, USA.ORCID 0000-0003-3392-6814
Brent R CollettDepartment of Psychiatry and Behavioral Sciences, University of Washington, Seattle, WA, USA.ORCID 0000-0002-0729-4326
Mary A KhetaniRehabilitation Sciences, College of Applied Health Sciences, University of Illinois at Chicago, Chicago, IL, USA.ORCID 0000-0003-2628-3371

Funding

Hemifacial Microsomia: Psychosocial and Other SequelaeR01DE011939 · NIDCR · BOSTON UNIVERSITY MEDICAL CAMPUS · PI WERLER, MARTHA M. · 1997 to 2015
$7.3M
NIDCR NIH HHS R01 DE011939
6 · The paper itself

Abstract

purposeTo examine differences in community participation and environmental support for youth with and without craniofacial microsomia.

methodsThis study involved secondary analyses of a subset of data (

resultsStatistically significant differences were found in community participation frequency (

conclusionsResults suggest lower community participation in youth with craniofacial microsomia as compared to non-affected peers not receiving services. This may suggest opportunities for designing and testing interventions to promote community participation among youth with craniofacial microsomia, so as to support their transition to adulthood.Implications for rehabilitationYouth with craniofacial microsomia may have unmet rehabilitation needs related to their community participation.Rehabilitation professionals should pay attention to participation of youth with craniofacial microsomia in activities that place a higher demand on involvement with others.Rehabilitation professionals should appraise participation frequency and involvement of youths with craniofacial microsomia to gain accurate insight into their current community participation.

Indexed as

Goldenhar SyndromeAdolescentAdultCohort StudiesCommunity ParticipationHumansLongitudinal StudiescaregiversLeisure activitiespatient reported outcome measures

Identifiers

PMID32478589
PMCPMC7704849

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.