ArticleJournal of general internal medicine2021
Health Literacy and Shared Decision-making: Exploring the Relationship to Enable Meaningful Patient Engagement in Healthcare.
Article in Journal of general internal medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07450950 (Evaluating Health Literacy, Expectations and Regrets in Patients Undergoing Major Abdominal Surgery for Malignant Disease), which is not on this map. Cited by 109 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Evaluating Health Literacy, Expectations and Regrets in Patients Undergoing Major Abdominal Surgery for Malignant Disease
Who cites it
109 citing papers in PubMed, 4 syntheses or guidelines pooled it, 221 citations in OpenAlex.
- Enhancing patient knowledge and behaviour through digital health communication: a systematic review and random-effects meta-analysis of mobile, web-based, social media, telehealth, and AI-enabled interventions.Frontiers in public health · 2026Pooled it
- Shared decision-making in type 2 diabetes: a systematic review of patients' preferences and healthcare providers' perspectives.BMC health services research · 2025Pooled it
- Systematic review of shared decision-making interventions for people living with chronic respiratory diseases.BMJ open · 2023Pooled it
- All together now - patient engagement, patient empowerment, and associated terms in personal healthcare.BMC health services research · 2022Pooled it
- A Critical Health Literacy Podcast to Counter Health Misinformation at Scale: Randomized Controlled Trial.JMIR public health and surveillance · 2026Trial
- Impact of health literacy and primary language on the decision to pursue trial of labor after prior cesarean delivery.BMC pregnancy and childbirth · 2025Trial
- Shared decision-making with patients with limited health literacy - experiences and needs of GPs regarding values clarification.Scandinavian journal of primary health care · 2026Article
- Shared Decision-Making in the Management of Deep Partial-Thickness Burns: Development and Implementation of a Multicomponent Decision Aid.Journal of medical Internet research · 2026Article
- Exploring the Interplay Between Emotions and Medical Decision-Making: Insights from an Empirical Patient-Centred Study.Healthcare (Basel, Switzerland) · 2026Article
- Development and Evaluation of a Shared Decision-Making Patient Decision Aid for Dental Clinic Care: A Mixed-Methods Study.Health science reports · 2026Article
- Global Engagement with an Educational Video on Vaginal Pessaries: A 9-Year Mixed-Methods Analysis of YouTube Analytics and User Comments.International urogynecology journal · 2026Article
- Prioritizing Equity in Design and Implementation of Consumer-Facing Digital Resources to Support Engagement and Shared Decision-Making.Journal of medical Internet research · 2026Article
- Spanish adaptation and validation of the Capability Cards for use in community primary health care.Primary health care research & development · 2026Article
- Associations Among Health Literacy, Decision Self-Efficacy, and Decisional Conflict in Stroke Survivor-Caregiver Dyads.The journal of nursing research : JNR · 2026Article
- Educational quality and viewer engagement of Youtube videos on ceramic implants: a cross-sectional study.BMC oral health · 2026Article
- Interventions to promote critical health literacy: a scoping review.Health promotion international · 2026Article
- Comprehensiveness, quality, and readability of non-invasive prenatal testing information on Japanese medical institution websites.PEC innovation · 2026Article
- Educating, Contextualizing, and Deferring: Qualitative Investigation of Physician Communication About Chronic Kidney Disease.Healthcare (Basel, Switzerland) · 2026Article
- Building a gene editing lexicon: a model for rare and inherited disorders.Gene therapy · 2026Article
- Moving toward meaningful shared decision-making in neonatal care: clinical practice and policy implications in Korea.Clinical and experimental pediatrics · 2026Article
49 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Research into health literacy and shared decision-making has largely developed along parallel, but distinct lines over the past two decades. There is little evidence that the concepts and related practice have intersected except in the most functional way, for example, to simplify shared decision-making tools by improving readability scores of decision aids. This paper presents an integrated model to strengthen and sustain patient engagement in health care by drawing on the strengths of both concepts. This includes addressing patients' skills and capacities, alongside modifications to written and verbal information. We propose an expanded model of shared decision-making which incorporates health literacy concepts and promotes two-tiered intervention methods to improve the targeting and personalization of communication and support the development of transferable health literacy skills among patients.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.