ArticleChild: care, health and development2020
Creating equitable healthcare quality and safety for children with intellectual disability in hospital.
Article in Child: care, health and development, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
9 citing papers in PubMed, 1 synthesis or guideline pooled it, 18 citations in OpenAlex.
- A systematic literature review on initiatives to involve children and adolescents in evaluating their hospitalization experience.BMC health services research · 2025Pooled it
- Improving the Quality of Care Coordination for Children and Young People with Intellectual Disability/Developmental Disorder in the Emergency Department Post CPD-QI Intervention (Motivated for Change Program).Children (Basel, Switzerland) · 2026Article
- What I Wish I Had Known: Examining Parent Accounts of Managing the Health of Their Child With Intellectual Disability.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Reported clinical incidents of children with intellectual disability: A qualitative analysis.Developmental medicine and child neurology · 2022Article
- Parental experiences of caring for children who have learning disabilities and procedural anxiety in hospital: An interpretive phenomenological study.Child: care, health and development · 2022Article
- Inequities in quality and safety outcomes for hospitalized children with intellectual disability.Developmental medicine and child neurology · 2022Article
- Exploring patient safety outcomes for people with learning disabilities in acute hospital settings: a scoping review.BMJ open · 2021Article
- Creating equitable healthcare quality and safety for children with intellectual disability in hospital.Child: care, health and development · 2020Article
- Parents' and Service Providers' Experiences of Accessing Health Services from an Intellectual Disability Health Team.Journal of primary care & community healthArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Children with intellectual disability are susceptible to poor experiences of care and treatment outcomes, and this may compound existing health inequities. Evidence to date indicates three priority areas that must be addressed in order to reduce these inequities in the safety and quality of care for children with intellectual disability. Firstly, we need reliable methods to identify children with intellectual disability so that healthcare organizations understand their needs. Secondly, we need to develop quality metrics that can assess care quality and unwarranted care variation for children with intellectual disability in hospital. Finally, for a comprehensive understanding of the safety and quality of care for these children, and how to improve, it is critical that healthcare organizations partner with parents/carers and enable children with intellectual disability to voice their experiences of care. Children with intellectual disability have higher healthcare utilization than their peers; yet, their voice is rarely sought to optimize the safety and quality of their healthcare experience. Patient experience narratives enhance our understanding of the genesis of adverse events. By addressing these priorities, children with intellectual disability will be identified, and health services will measure and understand the problematic and beneficial variations in care delivery and can then effectively partner with children and their parents/carers to address the inequities in care quality and create safer healthcare.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.