ArticleJMIR public health and surveillance2020
COVID-19: Putting the General Data Protection Regulation to the Test.
Article in JMIR public health and surveillance, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Equitable data sharing in epidemics and pandemics.BMC medical ethics · 2021Pooled it
- Respiratory virus surveillance in the post-pandemic era: challenges and opportunities for dashboard-based public health action.BMC proceedings · 2026Article
- Physiotherapy students' academic performance and satisfaction after following a chest physiotherapy course in hybrid mode: a case-control study.Scientific reports · 2024Article
- Data Sharing During Pandemics: Reciprocity, Solidarity, and Limits to Obligations.Journal of bioethical inquiry · 2023Article
- Linking health survey data with health insurance data: methodology, challenges, opportunities and recommendations for public health research. An experience from the HISlink project in Belgium.Archives of public health = Archives belges de sante publique · 2023Article
- FAIR, ethical, and coordinated data sharing for COVID-19 response: a scoping review and cross-sectional survey of COVID-19 data sharing platforms and registries.The Lancet. Digital health · 2023Article
- Federated Analysis for Privacy-Preserving Data Sharing: A Technical and Legal Primer.Annual review of genomics and human genetics · 2023Review
- A guide to sharing open healthcare data under the General Data Protection Regulation.Scientific data · 2023Article
- Implementing an outpatient clinical trial on COVID-19 treatment in an emergency epidemic context: a mixed methods study among operational and research stakeholders within the Coverage trial, Bordeaux (France).Archives of public health = Archives belges de sante publique · 2022Article
- In the shadow of privacy: Overlooked ethical concerns in COVID-19 digital epidemiology.Epidemics · 2022Article
- Practices and Attitudes of Bavarian Stakeholders Regarding the Secondary Use of Health Data for Research Purposes During the COVID-19 Pandemic: Qualitative Interview Study.Journal of medical Internet research · 2022Article
- Blockchain technology in migrant and refugee health: A scoping review.Journal of global health · 2022Article
- Value-creation in the health data domain: a typology of what health data help us do.BioSocieties · 2022Article
- Ethical insights from the COVID-19 pandemic in Germany: considerations for building resilient healthcare systems in Europe.The Lancet regional health. Europe · 2021Review
- A Literature Review on the GDPR, COVID-19 and the Ethical Considerations of Data Protection During a Time of Crisis.Yearbook of medical informatics · 2021Review
- Health informatics and EHR to support clinical research in the COVID-19 pandemic: an overview.Briefings in bioinformatics · 2021Review
- Collaborating in the Time of COVID-19: The Scope and Scale of Innovative Responses to a Global Pandemic.JMIR public health and surveillance · 2021Review
- Infectious diseases epidemiology, quantitative methodology, and clinical research in the midst of the COVID-19 pandemic: Perspective from a European country.Contemporary clinical trials · 2020Article
- Remote health diagnosis and monitoring in the time of COVID-19.Physiological measurement · 2020Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
The coronavirus disease (COVID-19) pandemic is very much a global health issue and requires collaborative, international health research efforts to address it. A valuable source of information for researchers is the large amount of digital health data that are continuously collected by electronic health record systems at health care organizations. The European Union's General Data Protection Regulation (GDPR) will be the key legal framework with regard to using and sharing European digital health data for research purposes. However, concerns persist that the GDPR has made many organizations very risk-averse in terms of data sharing, even if the regulation permits such sharing. Health care organizations focusing on individual risk minimization threaten to undermine COVID-19 research efforts. In our opinion, there is an ethical obligation to use the research exemption clause of the GDPR during the COVID-19 pandemic to support global collaborative health research efforts. Solidarity is a European value, and here is a chance to exemplify it by using the GDPR regulatory framework in a way that does not hinder but actually fosters solidarity during the COVID-19 pandemic.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.