Observational studyThe Journal of pediatrics2020
Associations between Infant and Parent Characteristics and Measures of Family Well-Being in Neonates with Seizures: A Cohort Study.
Observational study in The Journal of pediatrics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
21 citing papers in PubMed, 30 citations in OpenAlex.
- Well-being in parents of infants with neurological conditions: from birth to 6 months after discharge.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Profiles and Predictors of Neurodevelopmental Outcome at 5-6 Years in Children With a History of Acute Provoked Neonatal Seizures.Annals of neurology · 2026Article
- When the gatekeeper falls: developmental vulnerability of the thalamic reticular nucleus in neonatal and pediatric hypoxic-ischemic brain injury.Frontiers in systems neuroscience · 2026Review
- Article
- Parent and Family Well-Being and Associated Risk Factors as Children with Neonatal Seizures Reach Preschool and School-Age: A Longitudinal Cohort Study.Journal of pediatrics. Clinical practice · 2025Article
- Synergy in Child Neurology: Science, Collaboration, and Leadership - The 2024 Hower Award Lecture.Annals of the Child Neurology Society · 2025Article
- Evaluating stress and it associated factors in mothers of preterm infants in NICU: a cross-sectional study.Frontiers in global women's health · 2025Article
- Global, regional, and national epilepsy of unknown cause incidence and mortality, 1990-2036: cross-national health inequalities and predictive analytics.Frontiers in neurology · 2025Article
- Life After Neonatal Seizures: Characterizing the Longitudinal Parent Experience.Pediatric neurology · 2024Observational
- Families as partners in neonatal neuro-critical care programs.Pediatric research · 2024Review
- Parental impact during and after neonatal intensive care admission.Seminars in perinatology · 2024Review
- Neonatal Seizures: New Evidence, Classification, and Guidelines.Epilepsy currents · 2024Review
- Article
- Parent Experience of Hypoxic-Ischemic Encephalopathy and Hypothermia: A Call for Trauma Informed Care.American journal of perinatology · 2024Article
- Supporting Disclosure of Unmet Mental Health Needs among Parents of Critically Ill Infants.The Journal of pediatrics · 2023Article
- Neurodevelopmental outcomes of neonatal posthemorrhagic hydrocephalus and psychological effects on the parents.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2023Article
- Assessment of parent understanding in conferences for critically ill neonates.Patient education and counseling · 2022Article
- Prevalence of anxiety and post-traumatic stress (PTS) among the parents of babies admitted to neonatal units: A systematic review and meta-analysis.EClinicalMedicine · 2022Article
- Parent Mental Health and Family Coping over Two Years after the Birth of a Child with Acute Neonatal Seizures.Children (Basel, Switzerland) · 2021Article
- Family-Centered Care for Children and Families Impacted by Neonatal Seizures: Advice From Parents.Pediatric neurology · 2021Observational
Corrections and comments
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Authors and funding
18 authors at 10 institutions in 1 country.
Funding
Abstract
objectiveTo characterize and determine risk factors for key dimensions of well-being at hospital discharge in families of neonates with acute symptomatic seizures. STUDY
designThis prospective, observational cohort study enrolled 144 parent-infant dyads among neonates with acute symptomatic seizures from 9 pediatric hospitals in the Neonatal Seizure Registry. One parent per family completed a discharge survey, which included measures of anxiety and depression, health-related quality of life, and impact on the family. Multivariable regression analyses adjusted for site were constructed to examine parent and infant characteristics associated with well-being.
resultsAt discharge, 54% of parents reported symptoms of anxiety and 32% reported symptoms of depression. Parents of infants with hypoxic-ischemic encephalopathy reported more depression and worse quality of life than parents of infants with other seizure etiologies. Parental quality of life was also lower with greater infant age at discharge. A higher level of maternal education was associated with greater impact on the family. All these differences were medium to large effect sizes, ranging from 0.52 to 0.78.
conclusionsSymptoms of anxiety and depression are common in parents of infants with neonatal seizures, and several parent and infant characteristics are associated with poorer parental quality of life and family well-being. These findings are a call to action to improve mental health screening and services for parents of infants with neonatal seizures.
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