ArticleSocial science & medicine (1982)2020
Perceptions and experiences of stigma among parents of children with developmental disorders in Ethiopia: A qualitative study.
Article in Social science & medicine (1982), 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers, 1 of them a synthesis that pooled it.
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Who cites it
28 citing papers in PubMed, 1 synthesis or guideline pooled it, 78 citations in OpenAlex.
- The Role of Extended Family Members in the Lives of Autistic Individuals and Their Parents: A Systematic Review and Meta-Synthesis.Clinical child and family psychology review · 2025Pooled it
- Feasibility, acceptability, and preliminary impact of the WHO-Caregiver skill training (CST) in a low-income clinical setting: a mixed-methods evaluation.BMC health services research · 2026Article
- Children with intellectual disabilities in a low-resource setting: a qualitative study of parents' perspectives.European journal of pediatrics · 2026Article
- Article
- Managing stigma and reconstructing caregiver identity: a qualitative descriptive study of family caregivers of children with cerebral palsy in China.Frontiers in psychology · 2026Article
- Inclusive Education for Children with Developmental Disabilities in Ethiopia: Stakeholder Views on Benefits, Disadvantages and Priorities for Action.Journal of autism and developmental disorders · 2026Article
- The Social and Communicational Profile of Children Identified with Autism in Ethiopia.Children (Basel, Switzerland) · 2025Article
- Beliefs and perceptions towards congenital anomalies in Dilla town, Gedeo Zone, Southern Ethiopia; a qualitative study.BMC pediatrics · 2025Article
- Prevalence of Severe Disability and Its Associated Factors in Northwestern Ethiopia: Evidence From Dabat District of Amhara National Regional State.International journal of public health · 2025Article
- Caregiver-centred empowerment for families raising autistic children: A qualitative case study from Argentina.Autism : the international journal of research and practice · 2024Article
- Identifying Needs of Ethiopian and Eritrean American Parents of Autistic Children.Journal of autism and developmental disorders · 2024Article
- Interdisciplinary perspectives on 'what matters most' in the cultural shaping of health-related stigma in Indonesia.BMJ global health · 2024Article
- The impact of raising a child with a developmental or physical health condition in Ethiopia.Research in developmental disabilities · 2024Article
- "Frontiers in psychiatry · 2024Article
- Ensuring equitable access, engagement and ability of socially and ethnically diverse participants to benefit from health promotion programmes: a qualitative study with parent carers of disabled children.Frontiers in public health · 2024Article
- Non-specialist delivery of the WHO Caregiver Skills Training Programme for children with developmental disabilities: Stakeholder perspectives about acceptability and feasibility in rural Ethiopia.Autism : the international journal of research and practice · 2024Article
- Experiences of identifying pre-school children with disabilities in resource limited settings - an account from Malawi, Pakistan and Uganda.Disability & society · 2024Article
- Conceptualising the empowerment of caregivers raising children with developmental disabilities in Ethiopia: a qualitative study.BMC health services research · 2023Article
- Towards a "New Mothering" Practice? The Life Experiences of Mothers Raising a Child with Autism in Urban Ethiopia.International journal of environmental research and public health · 2023Article
- The experiences of parents raising children with developmental disabilities in Ethiopia.Autism : the international journal of research and practice · 2023Article
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 3 countries.
Funding
Abstract
Although stigma related to developmental disorders (DD) has been associated with poor mental health among caregivers, an in-depth understanding of factors that influence internalisation of stigma by caregivers is missing. The aim of our study was to explore perceptions and experiences of stigma among parents of children with DD in Ethiopia and examine the contributing and protective factors for internalised stigma based on the perspectives of the parents themselves. We conducted in-depth interviews with eighteen parents (fourteen mothers, four fathers) in Addis Ababa (between December 25, 2017 and January 8, 2018) and the rural town of Butajira (between August 08, 2018 and August 16, 2018). We analysed the data using thematic analysis. Parents perceived and experienced different forms of stigma that were directed towards their child (public stigma) and themselves (courtesy stigma). Some parents also described how they isolated themselves and their child from social life (affiliate stigma). Parents perceived the negative consequence of stigma on the lives of their child with DD, siblings and themselves. Most parents also described examples of positive reactions and support from their own family and the community. Participants' accounts suggested supportive contributions and positive responses from the general public came primarily from those who had better awareness of DD. Not all parents in our study internalised the stigma that was directed at them. Whilst perceived family support and acceptance and increased awareness about DD appeared to help some parents not to internalise stigma, the perceived lack of social support and acceptance made some parents vulnerable to internalised stigma. These findings can inform anti-stigma intervention priorities. Awareness-raising activities targeting the community as a whole as well as interventions targeting parents themselves are likely to be beneficial. Interventions should consider the wellbeing of the whole family unit rather than focus on individuals alone.
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