ReviewCurrent neurology and neuroscience reports2020
Caregiver Burden in Multiple Sclerosis: Recent Trends and Future Directions.
Review in Current neurology and neuroscience reports, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 50 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
50 citing papers in PubMed, 1 synthesis or guideline pooled it, 107 citations in OpenAlex.
- Does the inclusion of societal costs change the economic evaluations recommendations? A systematic review for multiple sclerosis disease.The European journal of health economics : HEPAC : health economics in prevention and care · 2023Pooled it
- Trial
- The relationship between health fatalism and caregiver burden in caregivers of patients with multiple sclerosis.Acta neurologica Belgica · 2026Article
- A mixed methods cross-sectional study of peer support needs and barriers among multiple sclerosis caregivers in Ireland.Journal of health psychology · 2026Article
- Article
- Association between informal help and background factors for persons with multiple sclerosis in Sweden: a cross-sectional study.BMJ open · 2025Article
- The caregiver burden of idiopathic inflammatory myopathies.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Empowering families: the role of family-centered programs in alleviating fatigue for chronically ill children and their parents.BMC pediatrics · 2025Article
- The Impact of In-Hospital Disease Modifying Treatments on Mental and Physical Burden in Caregiver of Patients With MS.Annals of clinical and translational neurology · 2025Article
- Understanding Diverse Caregiver Experiences and Their Impact on Caregiver Burden in Multiple Sclerosis.International journal of MS care · 2025Article
- Masculinity in Caregiving: Impact on Quality of Life and Self-Stigma in Caregivers of People with Multiple Sclerosis.Healthcare (Basel, Switzerland) · 2025Article
- Dyadic sleep in people with multiple sclerosis and their partners: current research and future directions.Frontiers in neurology · 2025Article
- The presence and burden of cognitive issues: discordance between the perception of neurologists and people living with multiple sclerosis.European journal of neurology · 2025Article
- Patient and Physician Perspectives of Treatment Burden in Multiple Sclerosis.Neurology and therapy · 2024Article
- Sustaining Joy in Serious Neurologic Illnesses.Seminars in neurology · 2024Review
- Using a Patient-Centered Multicriteria Decision Analysis to Assess the Value of Multiple Sclerosis Treatments in the US: A Study Protocol.PharmacoEconomics - open · 2024Article
- Valuing the Societal Impact of Medicines and Other Health Technologies: A User Guide to Current Best Practices.Forum for health economics & policy · 2024Article
- Profile and burden of the family caregiver: the caring experience in multiple sclerosis. An observational study.BMC psychology · 2024Observational
- Article
- Parental Experiences in Pediatric Multiple Sclerosis: Insights from Quantitative Research.Children (Basel, Switzerland) · 2024Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purpose of reviewIn spite of recent advances in treatment, many people with multiple sclerosis (MS) require ongoing care and support. Informal caregivers can experience burden as a result of their role, with possible implications for quality of life (QOL). We review recent research examining MS caregiver experience to (1) understand current risk factors for caregiver burden and (2) identify possible strategies for increasing carer well-being. RECENT
findingsMS caregiver experience is highly variable and can be predicted by a variety of care recipient, caregiver and contextual factors. Burden is not the only characteristic associated with care, with positive consequences also reported. Emerging research suggests a number of ways in which carers can be better supported. Identifying and meeting the needs of MS caregivers offers the best way of delivering tailored support. Future research should focus on the development of psychosocial supports, while acknowledging the needs of those caring for different MS patient populations.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.