Evidence map›Paper›PMID 32444448›Full record

ArticleArchives of disease in childhood2020

Children and young people's concerns and needs relating to their use of health technology to self-manage long-term conditions: a scoping review.

Sarah Blower, Veronica Swallow, Camila Maturana, Simon Stones, Robert Phillips, Paul Dimitri, Zoe Marshman, Peter Knapp, Alexandra Dean, Steven Higgins and 4 more

Open access · hybridAbstract readScoping Review
In one paragraph

Article in Archives of disease in childhood, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
20citing papers in PubMed, 3 pooled it
7.5field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

20 citing papers in PubMed, 3 syntheses or guidelines pooled it, 58 citations in OpenAlex.

  1. Pooled it
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  14. The application of metaverse in mental health.Frontiers in public health · 2025
    Review
  15. Article
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  18. Precision diagnostics in children.Cambridge prisms. Precision medicine · 2023
    Review
  19. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 7 institutions in 1 country.

Sarah BlowerDepartment of Health Sciences, University of York, York, UK.ORCID 0000-0002-9168-9995
Veronica SwallowCollege of Health, Wellbeing & Life Sciences, Sheffield Hallam University, Sheffield, South Yorkshire, UK.
Camila MaturanaYork Trials Unit, University of York, York, North Yorkshire, UK.
Simon StonesSchool of Healthcare, University of Leeds, Leeds, West Yorkshire, UK.
Robert PhillipsCentre for Reviews and Dissemination, University of York, York, North Yorkshire, UK.
Paul DimitriNIHR Children and Young People MedTech Cooperative, Sheffield Children's Hospital NHS Foundation Trust, Sheffield, Sheffield, UK.
Zoe MarshmanSchool of Clinical Dentistry, The University of Sheffield, Sheffield, Sheffield, UK.
Peter KnappDepartment of Health Sciences and Hull York Medical School, University of York, York, North Yorkshire, UK.
Alexandra DeanYork Trials Unit, University of York, York, North Yorkshire, UK.
Steven HigginsSchool of Education, University of Durham, Durham, UK.
Ian KellarSchool of Psychology, University of Leeds, Leeds, West Yorkshire, UK.
Penny CurtisSchool of Nursing and Midwifery, The University of Sheffield, Sheffield, Sheffield, UK.
Nathaniel MillsNIHR Children and Young People MedTech Co-operative and NIHR Devices for Dignity MedTech Co-operative, Sheffield Children's NHS Trust, Sheffield, UK.
Jacqueline Martin-KerryDepartment of Health Sciences, University of York, York, UK jackie.martin-kerry@york.ac.uk.ORCID 0000-0002-9299-1360
University of York · GBUniversity of Leeds · GBUniversity of Sheffield · GBDevices for Dignity · GBDurham University · GBSheffield Children's Hospital · GBSheffield Hallam University · GB

Funding

Department of Health PDF-2014-07-072Medical Research Council G0800472
6 · The paper itself

Abstract

backgroundThe use of patient-facing health technologies to manage long-term conditions is increasing; however, children and young people may have particular concerns or needs before deciding to use different health technologies.

aimsTo identify children and young people's reported concerns or needs in relation to using health technologies to self-manage long-term conditions.

methodsA scoping review was conducted. We searched MEDLINE, PsycINFO and CINAHL in February 2019. Searches were limited to papers published between January 2008 and February 2019. We included any health technology used to manage long-term conditions. A thematic synthesis of the data from the included studies was undertaken. We engaged children with long-term conditions (and parents) to support review design, interpretation of findings and development of recommendations.

resultsThirty-eight journal articles were included, describing concerns or needs expressed by n=970 children and/or young people aged 5-18 years. Most included studies were undertaken in high-income countries with children aged 11 years and older. Studies examined concerns with mobile applications (n=14), internet (n=9), social media (n=3), interactive online treatment programmes (n=3), telehealth (n=1), devices (n=3) or a combination (n=5). Children and young people's main concerns were labelling and identity; accessibility; privacy and reliability; and trustworthiness of information. DISCUSSION: This review highlights important concerns that children and young people may have before using technology to self-manage their long-term condition. In future, research should involve children and young people throughout the development of technology, from identifying their unmet needs through to design and evaluation of interventions.

Indexed as

Biomedical TechnologyHealth Services Needs and DemandSelf-ManagementAdolescentAttitude to HealthChildChronic DiseaseHumansadolescent healthtechnology

Identifiers

PMID32444448
PMCPMC7588410
OpenAlexW3021170881

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.