ArticleThe American journal of bioethics : AJOB2020
Patient and Family Descriptions of Ethical Concerns.
Article in The American journal of bioethics : AJOB, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
11 citing papers in PubMed, 47 citations in OpenAlex.
- A qualitative study of the ethical issues encountered at end-of-life care at a university teaching hospital in Nigeria.Journal of medical ethics · 2026Article
- Ethics support personnel's perceptions of patient and parent participation in clinical ethics support services in pediatric oncology.BMC medical ethics · 2025Article
- Article
- Ethical Challenges in Pediatric Medical Complexity: A Survey of Parents.The Journal of pediatrics · 2025Article
- Clinical Ethics Consultation in Chronic Illness: Challenging Epistemic Injustice Through Epistemic Modesty.HEC forum : an interdisciplinary journal on hospitals' ethical and legal issues · 2024Article
- 'If you build it, they will come…to the wrong door: evaluating patient and caregiver-initiated ethics consultations via a patient portal'.BMJ health & care informatics · 2024Article
- Approaching discussions about genetics with palliative patients and their families: a qualitative exploration with genetic health professionals.European journal of human genetics : EJHG · 2023Article
- Communication of patients' and family members' ethical concerns to their healthcare providers.BMC medical ethics · 2023Article
- Current landscape of research ethics consultation services: National survey results.Journal of clinical and translational science · 2023Article
- Ethical Concerns of Patients and Family Members Arising During Illness or Medical Care.AJOB empirical bioethics · 2023Article
- Broadening the Scope of Health Care Ethics Consultation: A Response to Open Peer Commentaries on Patient and Family Description of Ethical Concerns.The American journal of bioethics : AJOB · 2020Article
Corrections and comments
- Commented on by
- Commented on by
- Commented on by
- Commented on by
- Commented on by
- Commented on by
- Commented on by
- Commented on by
- Commented on by
Authors and funding
6 authors at 3 institutions in 1 country.
Funding
Abstract
Ethically challenging situations routinely arise in the course of illness and healthcare. However, very few studies have surveyed patients and family members about their experiences with ethically challenging situations. To address this gap in the literature, we surveyed patients and family members at three hospitals. We conducted a content analysis of their responses to open-ended questions about their most memorable experience with an ethical concern for them or their family member. Participants (
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.