ArticleEpidemiology and psychiatric sciences2020
Caregiver involvement in psychiatric inpatient treatment - a representative survey among triads of patients, caregivers and hospital psychiatrists.
Article in Epidemiology and psychiatric sciences, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 2 of them syntheses that pooled it.
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Who cites it
14 citing papers in PubMed, 2 syntheses or guidelines pooled it, 35 citations in OpenAlex.
- Next of kin involvement in mental health care services - a systematic participatory overview of evidence syntheses.BMC psychiatry · 2026Pooled it
- Guideline
- Relieving the Burden on Caregivers: A Single-Group, 4-Week Pilot Study Evaluating the Impact of a Brief Online Psychoeducation Program (AES) on Burden Reduction and Schizophrenia-Related Knowledge for Informal Caregivers of Individuals with Schizophrenia in German-Speaking Countries.Community mental health journal · 2026Article
- "It has to be part of the clinic's lived culture"- perspectives of next of kin on meaningful participation in psychiatric care: a participatory thematic analysis.BMC psychiatry · 2026Article
- Exploring the Meaning of Collaboration in Rural Mental Healthcare Delivery From the Perspective of Mental Health Clinicians and Informal Carers of People Living With a Mental Health Illness-A Qualitative Study.International journal of mental health nursing · 2025Article
- Supporting unpaid carers during section 17 leave from mental health in-patient wards: carer and practitioner perspectives.BJPsych open · 2025Article
- Interventions that support unpaid carers of adult mental health inpatients: a scoping review.Journal of mental health (Abingdon, England) · 2025Article
- Hope mediates the association between anxiety and caregivers' preparedness in schizophrenia: a cross-sectional study.Frontiers in public health · 2025Article
- Supporting unpaid carers around hospital leave for people detained under the Mental Health Act (1983) in England: carer and practitioner perspectives.BMC psychiatry · 2024Article
- Factors associated with depression, anxiety, and satisfaction with life among Malaysian parental caregivers of adolescent psychiatric patients: A cross-sectional study.Global mental health (Cambridge, England) · 2024Article
- Involvement and burden of informal caregivers of patients with mental illness: the mediating role of affiliated stigma.BMC psychiatry · 2023Article
- Concept of the Munich/Augsburg Consortium Precision in Mental Health for the German Center of Mental Health.Frontiers in psychiatry · 2022Review
- 'Triadic' shared decision making in mental health: Experiences and expectations of service users, caregivers and clinicians in Germany.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Empathy and perceived burden in caregivers of patients with schizophrenia spectrum disorders.BMC health services research · 2021Article
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
aimsStudies on the frequency of caregiver involvement in representative inpatient samples are scarce. The aim of our study was to conduct a representative survey on caregiver involvement in routine inpatient care involving all three parties (patients, caregivers, psychiatrists). Therefore, we performed face-to-face interviews consisting of open-ended questions to gain a deeper understanding of when and how caregivers are involved in care treatment and to identify which topics are mainly discussed.
methodsThis cross-sectional survey included inpatients from 55 acute psychiatric wards across ten psychiatric hospitals, their treating psychiatrists and, when possible, their caregivers. In total, we performed semi-structured face-to-face interviews with 247 patients, their treating psychiatrists and 94 informal caregivers. Each psychiatrist named the next two to three patients to be discharged. After a patient had given informed consent, the interview was performed by a researcher. In addition, the psychiatrist and, when possible, the primary caregiver identified by the patient, were also interviewed.
resultsIt was perceived by both patients and psychiatrists that contact between caregiver and psychiatrist had taken place in one-third of the patient cases. Predictors for psychiatrist-caregiver-contact were revealed in the patient's diagnosis (schizophrenia), a lower history of inpatient stays, and the respective hospital. According to psychiatrists the most frequent subjects of discussion with caregivers involved therapeutic issues and organisational and social-psychiatric topics (e.g. work, living and social support). Patients and caregivers stated that psychiatric treatment and the diagnostic classification of the mental illness were the most frequent topics of conversation. For all three groups, the most often cited reason for missed caregiver involvement was the subjective perception that a caregiver was not in fact needed.
conclusionsWhether or not caregivers were contacted and involved during an inpatient stay strongly depended on the individual hospital. The frequency of involvement of caregivers can certainly be increased by changing processes and structures in hospitals. All three parties (patients, caregivers and psychiatrists) most often stated that the caregiver was not involved in the treatment because they thought it was unnecessary. Evidence demonstrates the positive effect of caregivers' involvement on the therapeutic process but also on the well-being of the caregiver, therefore it is necessary to increase awareness of this evidence among all three interest groups.
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