ArticleJournal of pediatric nursing
Adaptive Leadership in Parents Caring for their Children Born with Life-Threatening Conditions.
Article in Journal of pediatric nursing. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed.
- "I need to find ways, and I've not yet been successful": Exploring adaptive challenges and adaptive leadership as experienced by patients with gastrointestinal malignancy.PEC innovation · 2026Article
- Coparenting Patterns of Parents of an Infant With Complex Congenital Heart Disease: Qualitative Identification and Network Analysis of Effects of Infant Illness Severity and Guided Participation Intervention.Research and theory for nursing practice · 2024Article
- Nurse-guided Mobile Health Care Program to Reduce Emotional Distress Experienced by Parents of Infants Prenatally Diagnosed with Critical Congenital Heart Disease: A Pilot Study.Progress in pediatric cardiology · 2024Article
- An mHealth, patient engagement approach to understand and address parents' mental health and caregiving needs after prenatal diagnosis of critical congenital heart disease.PEC innovation · 2023Article
- Application of complexity theory in health and social care research: a scoping review.BMJ open · 2023Article
- Self-care in children and young people with complex chronic conditions: a qualitative study using Emotional Text Mining.Frontiers in pediatrics · 2023Article
- Development and testing of a self-report measure of preparing to parent in the context of a fetal anomaly diagnosis.Patient education and counseling · 2021Article
- An exploration of co-parenting in the context of caring for a child prenatally diagnosed and born with a complex health condition.Journal of advanced nursing · 2018Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
purposeThe purpose of this study was to chronicle the adaptive challenges and adaptive work, including emerging leadership behaviors, recounted over time by the parents of very young children diagnosed before birth with life threatening conditions. DESIGN AND
methodsA descriptive, follow-up study design was used for the current study. Following the original grounded dimensional analysis study completed in 2012, the corpus for this analysis was collected in 2014. In-depth, audio-recorded interviews were conducted with 15 families (8 couples, 7 mothers). The 15 children, born with cardiac, abdominal, and cerebrospinal anomalies, were 14 - 37 months or deceased at follow-up. A directed content analysis of transcribed verbatim interviews was structured by the Adaptive Leadership framework.
resultsParents described behaviors that indicated a non-linear development towards adaptive leadership as they accomplished the adaptive work within intra- and interpersonal domains that was necessary to address challenges over time. Not all parents described abilities and/or a willingness to mobilize others to do adaptive work, suggesting that adaptive leadership remained an unrealized potential.
conclusionsUnderstood as a complex adaptive system, parents of medically at-risk children hold potential for development towards adaptive leadership and collaborative partnership within the family and with healthcare providers. PRACTICE IMPLICATIONS: Due to improved survival rates, parents face ongoing challenges related to their children's unpredictable and often chronic health needs. Study findings illustrate parents' adaptive work and leadership behaviors, which can inform nursing assessments, as well as the type and timing for intervention.
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