SynthesisActa paediatrica (Oslo, Norway : 1992)2021
Evaluation showed that stakeholders valued the support provided by the Implementing Pediatric Advance Care Planning Toolkit.
Synthesis in Acta paediatrica (Oslo, Norway : 1992), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 2 syntheses or guidelines pooled it, 52 citations in OpenAlex.
- A Dutch paediatric palliative care guideline: a systematic review and recommendations on advance care planning and shared decision-making.BMC palliative care · 2024Pooled it
- Evaluation showed that stakeholders valued the support provided by the Implementing Pediatric Advance Care Planning Toolkit.Acta paediatrica (Oslo, Norway : 1992) · 2021Pooled it
- Influence of pediatric advance care planning on the secondary outcomes of the BOOST pACP trial: determinants of communication between parents and adolescents with cancer.European journal of pediatrics · 2025Trial
- The BOOST paediatric advance care planning intervention for adolescents with cancer and their parents: development, acceptability and feasibility.BMC pediatrics · 2022Trial
- Pediatric Advance Care Planning and Families' Positive Caregiving Appraisals: An RCT.Pediatrics · 2021Trial
- Experiences with an Advance Care Planning Intervention for Children with Life-Limiting Conditions: A Qualitative Study of Families and Clinicians Using the IMplementing Pediatric Advance Care Planning Toolkit.Children (Basel, Switzerland) · 2026Article
- Pediatric advance care planning: a mixed-methods evaluation of documentation and sharing in current practice.BMC palliative care · 2026Article
- Characteristics of child development in the context of serious illness: a scoping review.BMC palliative care · 2025Article
- Designing a Positive Health Dialogue Tool for Adolescents and Young Adults: A Mixed Methods Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Experiences with a national team-based learning program for advance care planning in pediatric palliative care.BMC palliative care · 2024Article
- Article
- Parents' and healthcare professionals' experiences with the content of an individual care plan for pediatric palliative care: a mixed-method study.Palliative care and social practice · 2024Article
- Palliative care for children: methodology for the development of a national clinical practice guideline.BMC palliative care · 2023Review
- Pediatric Advance Care Planning: A Scoping Review.Children (Basel, Switzerland) · 2023Article
- Pediatric patient engagement in clinical care, research and intervention development: a scoping review.Journal of patient-reported outcomes · 2023Article
- Article
- Improvement and implementation of a national individual care plan in paediatric palliative care: a study protocol.BMJ paediatrics open · 2023Article
- Age-Appropriate Advance Care Planning in Children Diagnosed with a Life-Limiting Condition: A Systematic Review.Children (Basel, Switzerland) · 2022Review
- Development of the My Positive Health dialogue tool for children: a qualitative study on children's views of health.BMJ paediatrics open · 2022Article
- Advance care planning for adolescents with cancer and their parents: study protocol of the BOOST pACP multi-centre randomised controlled trial and process evaluation.BMC pediatrics · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
aimThis study described the development, and pilot evaluation, of the Implementing Pediatric Advance Care Planning Toolkit (IMPACT).
methodsKey elements of paediatric advance care planning (ACP) were defined using a systematic review, a survey of 168 paediatricians and qualitative studies of 13 children with life-limiting conditions, 20 parents and 18 paediatricians. Participants were purposively recruited from six Dutch university hospitals during September 2016 and November 2018. Key elements were translated into intervention components guided by theory. The acceptability of the content was evaluated by a qualitative pilot study during February and September 2019. This focused on 27 children with life-limiting conditions from hospitals, a hospice and home care, together with 41 parents, 11 physicians and seven nurses who cared for them.
resultsIMPACT provided a holistic, caring approach to ACP, gave children a voice and cared for their parents. It provided information on ACP for families and clinicians, manuals to structure ACP conversations and training for clinicians in communication skills and supportive attitudes. The 53 pilot study participants felt that IMPACT was appropriate for paediatric ACP.
conclusionIMPACT was an appropriate intervention that supported a holistic approach towards paediatric ACP, focused on the child's perspective and provided care for their parents.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.