Evidence map›Paper›PMID 32430935›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2020

Mainstreaming public involvement in a complex research collaboration: A theory-informed evaluation.

Fiona Ward, Jennie Popay, Ana Porroche-Escudero, Dorcas Akeju, Saiqa Ahmed, Jane Cloke, Koser Khan, Shaima Hassan, Esmaeil Khedmati-Morasae

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed.

  1. Article
  2. Article
  3. Collaborative evaluation of a pilot involvement opportunity: Cochrane Common Mental Disorders Voice of Experience College.Health expectations : an international journal of public participation in health care and health policy · 2023
    Article
  4. A Community of Practice to increase education and collaboration in dementia and ageing research and care: The Liverpool Dementia & Ageing Research Forum.Health expectations : an international journal of public participation in health care and health policy · 2023
    Article
  5. Evaluating the benefit of early patient and public involvement for product development and testing with small companies.Health expectations : an international journal of public participation in health care and health policy · 2023
    Article
  6. Article
  7. Article
  8. Article
  9. Mainstreaming public involvement in a complex research collaboration: A theory-informed evaluation.Health expectations : an international journal of public participation in health care and health policy · 2020
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Fiona WardDivision of Health Research, Faculty of Health and Medicine, Lancaster University, Lancaster, UK.ORCID 0000-0001-6426-2665
Jennie PopayDivision of Health Research, Faculty of Health and Medicine, Lancaster University, Lancaster, UK.ORCID 0000-0001-9234-908X
Ana Porroche-EscuderoDivision of Health Research, Faculty of Health and Medicine, Lancaster University, Lancaster, UK.ORCID 0000-0002-2740-5273
Dorcas AkejuCLAHRC North West Coast, University of Liverpool, Liverpool, UK.
Saiqa AhmedCLAHRC North West Coast, University of Liverpool, Liverpool, UK.
Jane ClokeCLAHRC North West Coast, University of Liverpool, Liverpool, UK.ORCID 0000-0001-6332-9186
Koser KhanDivision of Health Research, Faculty of Health and Medicine, Lancaster University, Lancaster, UK.ORCID 0000-0003-0473-6552
Shaima HassanDepartment of Health Services Research, Institute of Psychology, Health and Society, University of Liverpool, Liverpool, UK.ORCID 0000-0001-7840-3342
Esmaeil Khedmati-MorasaeResearch Fellow in Policy and Complex Systems, University of Exeter, Exeter, UK.ORCID 0000-0003-2172-9653

Funding

Medical Research Council G0902155
6 · The paper itself

Abstract

introductionThere is an extensive literature on public involvement (PI) in research, but this has focused primarily on experiences for researchers and public contributors and factors enabling or restricting successful involvement in specific projects. There has been less consideration of a 'whole system' approach to embedding PI across an organization from governance structures through to research projects.

objectiveTo investigate how a combination of two theoretical frameworks, one focused on mainstreaming and the other conceptualizing quality, can illuminate the embedding of positive and influential PI throughout a research organization.

methodsThe study used data from the evaluation of a large UK research collaboration. Primary data were collected from 131 respondents (including Public Advisers, university, NHS and local government staff) via individual and group interviews/workshops. Secondary sources included monitoring data and internal documents.

findingsCLAHRC-NWC made real progress in mainstreaming PI. An organizational vision and infrastructure to embed PI at all levels were created, and the number and range of opportunities increased; PI roles became more clearly defined and increasingly public contributors felt able to influence decisions. However, the aspiration to mainstream PI throughout the collaboration was not fully achieved: a lack of staff 'buy-in' meant that in some areas, it was not experienced as positively or was absent.

conclusionThe two theoretical frameworks brought a novel perspective, facilitating the investigation of the quality of PI in structures and processes across the whole organization. We propose that combining these frameworks can assist the evaluation of PI research.

Indexed as

Research PersonnelHumanscommunity involvementevaluationmainstreamingPublic Adviserpublic involvementtheoretical framework

Identifiers

PMID32430935
PMCPMC7495077

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.