Evidence map›Paper›PMID 32427108›Full record

ArticleJournal of medical Internet research2020

User Experiences of an Internet-Based Stepped-Care Intervention for Individuals With Cancer and Concurrent Symptoms of Anxiety or Depression (the U-CARE AdultCan Trial): Qualitative Study.

Helena Igelström, Anna Hauffman, Sven Alfonsson, Jonas Sjöström, Åsa Cajander, Birgitta Johansson

Abstract read
In one paragraph

Article in Journal of medical Internet research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Helena IgelströmDepartment of Neuroscience, Uppsala University, Uppsala, Sweden.ORCID 0000-0002-6421-2227
Anna HauffmanDepartment of Immmunology, Genetics and Pathology, Uppsala University, Uppsala, Sweden.ORCID 0000-0003-3845-6209
Sven AlfonssonDepartment of Women's and Children's Health, Uppsala University, Uppsala, Sweden.ORCID 0000-0003-4570-5891
Jonas SjöströmDepartment of Informatics and Media, Uppsala University, Uppsala, Sweden.ORCID 0000-0001-6920-4114
Åsa CajanderDepartment of Information Technology, Uppsala University, Uppsala, Sweden.ORCID 0000-0001-7472-2215
Birgitta JohanssonDepartment of Immmunology, Genetics and Pathology, Uppsala University, Uppsala, Sweden.ORCID 0000-0001-6226-6849

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe internet-based stepped-care intervention iCAN-DO, used in the multicenter randomized controlled trial AdultCan, was developed for adult patients undergoing treatment for cancer and concurrently experiencing anxiety or depressive symptoms. iCAN-DO aimed to decrease symptoms of anxiety or depression. Step 1 comprises access to a library with psychoeducational material and a peer-support section, as well as the possibility to pose questions to a nurse. Step 2 of the intervention offers treatment consisting of internet-based cognitive behavioral therapy (iCBT) to participants still experiencing anxiety or depression at 1, 4, or 7 months after inclusion.

objectiveThe study aimed to explore user experiences of delivery, design, and structure of iCAN-DO from the perspective of people with cancer.

methodsWe studied user experiences by interviewing 15 informants individually: 10 women with breast cancer (67%), 4 men with prostate cancer (27%), and 1 man with colorectal cancer (7%) with a mean age 58.9 years (SD 8.9). The interviews focused on informants' perceptions of ease of use and of system design and structure. Informants had been included in iCAN-DO for at least 7 months. They were purposefully selected based on activity in Step 1, participation in iCBT (ie, Step 2), gender, and diagnosis.

resultsOf the 15 informants, 6 had been offered iCBT (40%). All informants used the internet on a daily basis, but 2 (13%) described themselves as very inexperienced computer users. The analysis revealed three subthemes, concerning how user experiences were affected by disease-specific factors and side effects (User experience in the context of cancer), technical problems (Technical struggles require patience and troubleshooting), and the structure and design of iCAN-DO (Appealing and usable, but rather simple).

conclusionsThe results indicate that user experiences were affected by informants' life situations, the technical aspects and the design of iCAN-DO, and informants' preferences. The results have generated some developments feasible to launch during the ongoing study, but if iCAN-DO is to be used beyond research interest, a greater level of tailoring of information, features, and design may be needed to improve user experiences. The use of recurrent questionnaires during the treatment period may highlight an individual's health, but also function as a motivator showing improvements over time.

Indexed as

AdultAgedAnxietyDepressionFemaleHumansInternetInternet-Based InterventionMaleMiddle AgedNeoplasmsQualitative Researchcancerinteractive web portalinterviewsstepped careuser experience

Identifiers

PMID32427108
PMCPMC7268002

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.