ArticleResearch involvement and engagement2020
Patient and public involvement in doctoral research: reflections and experiences of the PPI contributors and researcher.
Article in Research involvement and engagement, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 50 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
50 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Evaluating Process and Outcomes of Public Involvement in Applied Health and Social Care Research: A Rapid Systematic Review.Health expectations : an international journal of public participation in health care and health policy · 2025Pooled it
- Patients as Co-Researchers in Oncology: A Qualitative Exploration of Participatory Governance.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Patient and public involvement in health and social care doctoral research: recommendations co-produced by doctoral researchers, public contributors, and a public involvement coordinator.Research involvement and engagement · 2026Article
- A critical reflective analysis of patient and public involvement in a programme of heart failure with preserved ejection fraction research.Research involvement and engagement · 2026Article
- Public and Patient Involvement and Engagement in Clinical Trials: A Multi-Perspective Mixed-Methods Evaluation of the ROWTATE Programme.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Making space to listen: engaging people with a chronic condition and various health literacy levels as citizen researchers.Research involvement and engagement · 2026Article
- Supporting researchers to involve patient partners in health service research: developing and assessing the feasibility and acceptability of a co-produced training programme for researchers.Research involvement and engagement · 2026Article
- Embedding public and patient involvement in childhood stuttering research: lessons learned from engaging children and families in Saudi Arabia.Research involvement and engagement · 2026Article
- Combining Listening Cafés and a Games-Based Co-Design Approach for Public Involvement With Underserved Communities: A Methodology and Lessons Learned From Health Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Beyond the dataset: integrating public voices in data science.Research involvement and engagement · 2026Article
- Co-developing a survey on public understanding of sustainable clinical research: A study protocol.PloS one · 2026Article
- A Co-production Evaluation Tool Informed by Co-production Workshops for Use in Evidence Synthesis Contexts.Cochrane evidence synthesis and methods · 2026Article
- What approaches are used to facilitate people from under-served communities getting involved with health research? A public contributor led review.Research involvement and engagement · 2025Review
- 'Making little ethical decisions all the time': examining an ethical framework for consumer and community involvement in research, a co-produced ethnographic study.BMC medical ethics · 2025Article
- Patient and public involvement and engagement in methodology research: process, experiences, and recommendations from the SPIRIT- and CONSORT-Surrogate project.Research involvement and engagement · 2025Article
- What actually happens in partnered health research? A concordance analysis of agreement on partnership practices in funded Canadian projects between academic and knowledge user investigators.BMC medical research methodology · 2025Article
- Experience, Process, and Impact of Involving Informal Caregivers of People With Dementia as Public Contributors to Inform the Development of a Complex Intervention: A Mixed-Methods Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Adaptation of the Content of a Behavioural Text Message Delivered Weight Management Intervention for a Socio-Culturally and Geographically Diverse Population of Postpartum Women in the UK: The Supporting MumS (SMS) Intervention.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- "How can we involve Patients?" - Students' perspectives on embedding PPIE into a doctoral training centre for AI in medical diagnosis and care.Research involvement and engagement · 2025Article
- Evaluation of the impact of patient and public involvement on doctoral students in palliative dementia care research.Research involvement and engagement · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
plain english summaryThere is evidence in the literature showing that involving patients and the public in health research can have a positive influence on quality, relevance and impact of research. However, patients and the public are not always involved in all stages of the research. There is often no explanation as to why they were only involved in some stages of the research and not others. Additionally, there is often no description of researchers' or PPI contributor's experiences of involvement. This also raises another issue which is a lack of recording of impact such involvement can have on the research process and the people involved in the research. In this paper, we present what PPI in a doctoral research should look like by providing a detailed description of how involvement occurred from pre-funding to dissemination stages of the research process. We provide some practical examples of how this was done and how involving patients made a difference to the research project. Finally, we present reflections from the patient and public contributors and the researcher on involvement in this project along with some recommendations for future doctoral and postdoctoral researchers considering involving public/patient contributors in their research. ABSTRACT:
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.