Evidence map›Paper›PMID 32419912›Full record

ArticleFrontline gastroenterology2020

Patient experience of gastrointestinal endoscopy: informing the development of the Newcastle ENDOPREM™.

Laura J Neilson, Joanne Patterson, Christian von Wagner, Paul Hewitson, Lesley M McGregor, Linda Sharp, Colin J Rees

Registry-linked trialOpen access · greenAbstract read
In one paragraph

Article in Frontline gastroenterology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07506642 (Patient-Reported Experience Measures Of EUS-Guided Versus Percutaneous Liver Biopsy), which is not on this map. Cited by 28 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
28citing papers in PubMed, 1 pooled it
7.3field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT07506642 completednot on this mapstarted 2023, after this paper: background citation

Patient-Reported Experience Measures Of EUS-Guided Versus Percutaneous Liver Biopsy: A Prospective Randomized Controlled Study

TypeobservationalSponsorUniversity Hospital MuensterRan2023 to 2024Enrolled102ConditionsChronic Liver Disease (CLD), Liver Transplantation, CirrhosisArmsEUS Liver Biopsy, Percutaneous Liver Biopsy
3 · Its place in the literature

Who cites it

28 citing papers in PubMed, 1 synthesis or guideline pooled it, 48 citations in OpenAlex.

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  16. The COLO-COHORT (Colorectal Cancer Cohort) study: Protocol for a multi-centre, observational research study and development of a consent-for-contact research platform.Colorectal disease : the official journal of the Association of Coloproctology of Great Britain and Ireland · 2022
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 6 institutions in 1 country.

Laura J NeilsonDepartment of Gastroenterology, South Tyneside District Hospital, South Tyneside and Sunderland NHS Foundation Trust, South Shields, UK.ORCID 0000-0002-7185-0825
Joanne PattersonPopulation Health Sciences Institute, Newcastle University, Newcastle upon Tyne, Tyne and Wear, UK.
Christian von WagnerResearch Department of Behavioural Science and Health, University College London, London, UK.ORCID 0000-0002-7971-0691
Paul HewitsonNuffield Department of Population Health, University of Oxford, Oxford, UK.
Lesley M McGregorDivision of Psychology, University of Stirling, Stirling, UK.
Linda SharpPopulation Health Sciences Institute & Newcastle University Centre for Cancer, Newcastle University, Newcastle upon Tyne, Tyne and Wear, UK.
Colin J ReesDepartment of Gastroenterology, South Tyneside District Hospital, South Tyneside and Sunderland NHS Foundation Trust, South Shields, UK.
South Tyneside District Hospital · GBNewcastle University · GBSunderland Royal Hospital · GBUniversity College London · GBUniversity of Oxford · GBUniversity of Stirling · GB

Funding

Cancer Research UK 14134
6 · The paper itself

Abstract

backgroundMeasuring patient experience is important for evaluating the quality of patient care, identifying aspects requiring improvement and optimising patient outcomes. Patient Reported Experience Measures (PREMs) should, ideally, be patient derived, however no such PREMs for gastrointestinal (GI) endoscopy exist. This study explored the experiences of patients undergoing GI endoscopy and CT colonography (CTC) in order to: identify aspects of care important to them; determine whether the same themes are relevant across investigative modalities; develop the framework for a GI endoscopy PREM.

methodsPatients aged ≥18 years who had undergone oesophagogastroduodenoscopy (OGD), colonoscopy or CTC for symptoms or surveillance (but not within the national bowel cancer screening programme) in one hospital were invited to participate in semi-structured interviews. Recruitment continued until data saturation. Inductive thematic analysis was undertaken.

results35 patients were interviewed (15 OGD, 10 colonoscopy, 10 CTC). Most patients described their experience chronologically, and five 'procedural stages' were evident: before attending for the test; preparing for the test; at the hospital, before the test; during the test; after the test. Six themes were identified: anxiety; expectations; choice & control; communication & information; comfort; embarrassment & dignity. These were present for all three procedures but not all procedure stages. Some themes were inter-related (eg, expectations & anxiety; communication & anxiety).

conclusionWe identified six key themes encapsulating patient experience of GI procedures and these themes were evident for all procedures and across multiple procedure stages. These findings will be used to inform the development of the Newcastle ENDOPREM™.

Indexed as

colonoscopyCTendoscopygastroscopy

Identifiers

PMID32419912
PMCPMC7223270
OpenAlexW2998741608

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.