Evidence map›Paper›PMID 32419908›Full record

ArticleFrontline gastroenterology2020

Consensus standards of healthcare for adults and children with inflammatory bowel disease in the UK.

Rukshana Kapasi, Jackie Glatter, Christopher A Lamb, Austin G Acheson, Charles Andrews, Ian D Arnott, Kevin J Barrett, Graham Bell, Guaraang Bhatnagar, Stuart Bloom and 28 more

Open access · hybridAbstract read
In one paragraph

Article in Frontline gastroenterology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 54 papers.

0numbers the graph read from it
0cells of the map it votes in
54citing papers in PubMed
7.3field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

54 citing papers in PubMed, 102 citations in OpenAlex.

  1. Using a Person-Centred Approach to Adapt a Digital Therapy for Inflammatory Bowel Disease (COMPASS-IBD).Health expectations : an international journal of public participation in health care and health policy · 2026
    Trial
  2. Trial
  3. Review
  4. Intravenous iron in ulcerative colitis-Raising the (iron) bar.Indian journal of gastroenterology : official journal of the Indian Society of Gastroenterology · 2026
    Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Models of outpatient care delivery in inflammatory bowel disease: a scoping review.Journal of the Canadian Association of Gastroenterology · 2025
    Article
  11. Review
  12. Article
  13. Article
  14. Article
  15. Article
  16. Article
  17. Article
  18. Article
  19. Article
  20. Patient and Public Involvement in Inflammatory Bowel Disease Research-A Scoping Review.Journal of the Canadian Association of Gastroenterology · 2024
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

38 authors at 20 institutions in 1 country.

Rukshana KapasiCrohn's & Colitis UK, Hatfield, UK.ORCID 0000-0002-6593-167X
Jackie GlatterCrohn's & Colitis UK, Hatfield, UK.
Christopher A LambNewcastle University, Newcastle upon Tyne, UK.
Austin G AchesonNottingham University Hospitals NHS Trust, Nottingham, UK.
Charles AndrewsMendip Vale Medical Practice, Yatton, UK.
Ian D ArnottWestern General Hospital, Edinburgh, UK.
Kevin J BarrettNew Road Surgery, Rickmansworth, UK.ORCID 0000-0002-0785-1815
Graham BellIBD UK, Hatfield, UK.
Guaraang BhatnagarFrimley Health NHS Foundation Trust, Frimley, UK.
Stuart BloomUniversity College London Hospitals NHS Foundation Trust, London, UK.
Matthew James BrookesRoyal Wolverhampton Hospitals NHS Trust, Wolverhampton, UK.
Steven R BrownSheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK.
Nicola BurchUniversity Hospitals Coventry and Warwickshire NHS Trust, Coventry, UK.
Andy BurmanBritish Dietetic Association, Birmingham, UK.
Kay CrookSt Mark's Hospital, Harrow, UK.
Jr Fraser CummingsSouthampton University NHS Trust, Southampton, UK.
Justin DaviesAddenbrooke's Hospital, Cambridge, Cambridgeshire, UK.
Anne DemickIleostomy & Internal Pouch Association, Essex, UK.
Jenny EpsteinChelsea and Westminster Hospital NHS Foundation Trust, London, UK.
Omar FaizSt Mark's Hospital, Harrow, UK.
Roger FeakinsBarts Health NHS Trust, London, UK.
Melissa FletcherIBD UK, Hatfield, UK.
Vikki GarrickRoyal Hospital for Children, Glasgow, UK.
Bruce JaffrayNewcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK.
Matthew JohnsonLuton and Dunstable University Hospital NHS Foundation Trust, Luton, UK.
Katie KeetarutUniversity College London Hospitals NHS Foundation Trust, London, UK.
Jimmy LimdiThe Pennine Acute Hospitals NHS Trust, Manchester, UK.
Uchu MeadeSt Mark's Hospital, Harrow, UK.
Rafeeq MuhammedBirmingham Children's Hospital NHS Foundation Trust, Birmingham, UK.ORCID 0000-0001-6107-8109
Andrew MurdockCraigavon Area Hospital, Portadown, Armagh, UK.
Nick PosfordCICRA, Sutton, UK.
Georgina RowseUniversity of Sheffield, Sheffield, UK.
Ian ShawGloucestershire Hospitals NHS Foundation Trust, Cheltenham, UK.
Anja St Clair JonesBrighton and Sussex University Hospitals NHS Trust, Brighton, UK.
Stuart TaylorUniversity College London Hospitals NHS Foundation Trust, London, UK.
Sean WeaverRoyal Bournemouth and Christchurch Hospitals NHS Foundation Trust, Bournemouth, UK.
Lisa YoungeBarts Health NHS Trust, London, UK.
Antony Barney HawthorneUniversity Hospital of Wales, Cardiff, UK.
University College London Hospitals NHS Foundation Trust · GBCrohn's and Colitis UK · GBNewcastle upon Tyne Hospitals NHS Foundation Trust · GBSt Mark's Hospital · GBAddenbrooke's Hospital · GBBarts Health NHS Trust · GBBirmingham Children's Hospital · GBBritish Dietetic Association · GBChelsea and Westminster Hospital NHS Foundation Trust · GBCraigavon Area Hospital · GBCrohn's in Childhood Research Association · GBFrimley Health NHS Foundation Trust · GBGloucestershire Hospitals NHS Foundation Trust · GBLuton and Dunstable University Hospital NHS Foundation Trust · GBNottingham University Hospitals NHS Trust · GBPennine Acute Hospitals NHS Trust · GBPrysmian Group (United Kingdom) · GBQueen Mary University of London · GBRoyal Bournemouth and Christchurch Hospitals NHS Foundation Trust · GBRoyal Hospital for Children · GB

Funding

Department of Health 11/23/01
6 · The paper itself

Abstract

objectiveSymptoms and clinical course during inflammatory bowel disease (IBD) vary among individuals. Personalised care is therefore essential to effective management, delivered by a strong patient-centred multidisciplinary team, working within a well-designed service. This study aimed to fully rewrite the UK Standards for the healthcare of adults and children with IBD, and to develop an IBD Service Benchmarking Tool to support current and future personalised care models.

designLed by IBD UK, a national multidisciplinary alliance of patients and nominated representatives from all major stakeholders in IBD care, Standards requirements were defined by survey data collated from 689 patients and 151 healthcare professionals. Standards were drafted and refined over three rounds of modified electronic-Delphi.

resultsConsensus was achieved for 59 Standards covering seven clinical domains; (1) design and delivery of the multidisciplinary IBD service; (2) prediagnostic referral pathways, protocols and timeframes; (3) holistic care of the newly diagnosed patient; (4) flare management to support patient empowerment, self-management and access to specialists where required; (5) surgery including appropriate expertise, preoperative information, psychological support and postoperative care; (6) inpatient medical care delivery (7) and ongoing long-term care in the outpatient department and primary care setting including shared care. Using these patient-centred Standards and informed by the IBD Quality Improvement Project (IBDQIP), this paper presents a national benchmarking framework.

conclusionsThe Standards and Benchmarking Tool provide a framework for healthcare providers and patients to rate the quality of their service. This will recognise excellent care, and promote quality improvement, audit and service development in IBD.

Indexed as

auditbenchmarkCDcolitiscost-effectivenessCrohn’s diseasegastroenterologyguidelineIBDinflammatory bowel diseaseMDTmultidisciplinary teampaediatricspathwaypatient educationprotocolquality improvementself-managementservice developmentstandardsUCulcerative colitis

Identifiers

PMID32419908
PMCPMC7223296
OpenAlexW2962699427

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.