ArticleBJPsych open2020
Carers' views on autism and eating disorders comorbidity: qualitative study.
Article in BJPsych open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 2 of them syntheses that pooled it.
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Who cites it
26 citing papers in PubMed, 2 syntheses or guidelines pooled it, 43 citations in OpenAlex.
- A scoping review of the relationship between autistic traits and eating disorders: exploring the secondary impact of eating disorders and co-occurring psychiatric diagnoses.Frontiers in psychiatry · 2026Pooled it
- Understanding the Autistic Experience of Restrictive Eating Disorders-A Systematic Review and Qualitative-Synthesis.European eating disorders review : the journal of the Eating Disorders Association · 2025Pooled it
- Considering Autism in Binge-Type Eating Disorders: Broadening Beyond an Anorexia Nervosa-Focused Model.Current psychiatry reports · 2026Review
- "No one was coming to save us": an interpretative phenomenological analysis exploring the experience of parents supporting their autistic daughter through anorexia nervosa.Journal of eating disorders · 2025Article
- "I could be living a totally different life right now": lived experience and caregiver perspectives on the prevention of eating disorders.Journal of eating disorders · 2025Article
- Social camouflaging of autistic traits is associated with more severe symptoms among subjects with feeding and eating disorders.Eating and weight disorders : EWD · 2025Article
- A pilot study investigating the acceptability and feasibility of a group intervention for parents of autistic young people with anorexia nervosa within a specialist eating disorders service.Journal of eating disorders · 2025Article
- Understanding the child and adolescent eating disorder treatment experiences of autistic people and parents.Journal of eating disorders · 2025Article
- Clinicians' Experiences of Eating Disorder Focused Family Therapy With Autistic Young People.European eating disorders review : the journal of the Eating Disorders Association · 2025Article
- Re-imagining connection: the role of late autism diagnosis in eating disorder recovery and social support.Journal of eating disorders · 2025Article
- Case Report: Substance fixation in autism spectrum disorder with resultant anorexia nervosa.Frontiers in psychiatry · 2025Article
- Camouflaging, not sensory processing or autistic identity, predicts eating disorder symptoms in autistic adults.Autism : the international journal of research and practice · 2024Article
- Article
- A qualitative evaluation of the pathway for eating disorders and autism developed from clinical experience (PEACE): clinicians' perspective.Frontiers in psychiatry · 2024Article
- Parent perspectives of children with selective mutism and co-occurring autism.International journal of developmental disabilities · 2024Article
- Challenges and opportunities for conceptualizing intuitive eating in autistic people.The International journal of eating disorders · 2023Article
- Co-producing principles to guide health research: an illustrative case study from an eating disorder research clinic.Research involvement and engagement · 2023Article
- "It's not about wanting to be thin or look small, it's about the way it feels": an IPA analysis of social and sensory differences in autistic and non-autistic individuals with anorexia and their parents.Journal of eating disorders · 2023Article
- Towards identifying a method of screening for autism amongst women with restrictive eating disorders.European eating disorders review : the journal of the Eating Disorders Association · 2022Article
- A comparison of the eating disorder service experiences of autistic and non-autistic women in the UK.European eating disorders review : the journal of the Eating Disorders Association · 2022Article
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatients with co-occurring anorexia nervosa and autism respond differently to eating disorder treatments. Previous interviews with patients with both conditions and clinicians working in eating disorder services has highlighted service and treatment adaptations might be beneficial and could improve outcomes for these individuals.
aimsThe aim of this study was to explore carers' experiences of current treatment approaches for people with autism who have anorexia nervosa, and their views on how these can be improved.
methodTen carers of a loved one diagnosed with autism and anorexia nervosa were interviewed using a semi-structured interview schedule and the transcripts were analysed with thematic analysis.
resultsFour key themes emerged from the interviews: the role of autism in anorexia nervosa, carers' problems with clinical services, the impact on carers and suggestions for future improvements.
conclusionsCarers agreed that autism played a significant role in the development and maintenance of their daughters' anorexia nervosa. However, this comorbidity does not appear to be appropriately addressed in current treatment provisions. They described several difficulties, including problems getting an autism diagnosis and the perception that eating disorder services did not accept or adapt around the condition. This resulted in feelings of frustration and isolation for families, a scenario exacerbated by a perceived lack of support or specific resources for carers of individuals on the autism spectrum. Clinical recommendations on the basis of the current and previous studies are outlined.
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