Evidence map›Paper›PMID 32415570›Full record

ArticleJournal of community genetics2020

Empowering newborn screening programs in African countries through establishment of an international collaborative effort.

Bradford L Therrell, Michele A Lloyd-Puryear, Kwaku Ohene-Frempong, Russell E Ware, Carmencita D Padilla, Emmanuela E Ambrose, Amina Barkat, Hassan Ghazal, Charles Kiyaga, Tisungane Mvalo and 9 more

Abstract read
In one paragraph

Article in Journal of community genetics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 50 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
50citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

50 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
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  19. Newborn screening initiatives for sickle cell disease in Africa.Hematology. American Society of Hematology. Education Program · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors.

Bradford L TherrellNational Newborn Screening and Global Resource Center, University of Texas Health Science Center at San Antonio, Austin, TX, USA. Therrell@uthscsa.edu.ORCID https://orcid.org/0000-0001-6272-7350
Michele A Lloyd-PuryearAmerican College of Medical Genetics and Genomics, Bethesda, MD, USA.
Kwaku Ohene-FrempongSickle Cell Foundation of Ghana, National Newborn Screening Program for Sickle Cell Disease, Accra, Ghana.
Russell E WareDivision of Hematology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
Carmencita D PadillaUniversity of the Philippines Manila, Manila, Philippines.
Emmanuela E AmbroseBugando Medical Centre and Catholic University of Health and Allied Sciences, Mwanza, Tanzania.
Amina BarkatFaculty of Medicine and Pharmacy, University Mohammed V, Rabat, Morocco.
Hassan GhazalNational Center for Scientific and Technological Research, Rabat, Morocco.
Charles KiyagaCentral Public Health Laboratories, Ministry of Health, Kampala, Uganda.
Tisungane MvaloUniversity of North Carolina Project Malawi, Lilongwe, Malawi.
Obiageli NnoduCentre of Excellence for Sickle Cell Disease Research and Training, University of Abuja, Abuja, Nigeria.
Karim OuldimFaculty of Medicine and Pharmacy, University Sidi Mohamed Ben Abdellah, Fes, Morocco.
Mohamed Chérif RahimyNational Sickle Cell Disease Center, Faculty of Health Sciences, University of Abomey-Calavi, Cotonou, Benin.
Brígida SantosCentro de Apoio ao Doente Anémico, Hospital Pediátrico David Bernardino, Luanda, Angola.
Léon TshiloloCentre Hospitalier Monkole, Kinshasa, Democratic Republic of the Congo.
Careema YusufAssociation of Public Health Laboratories, Silver Spring, MD, USA.
Guisou ZarbalianAssociation of Public Health Laboratories, Silver Spring, MD, USA.
Michael S WatsonAmerican College of Medical Genetics and Genomics, Bethesda, MD, USA.
faculty and speakers at the First Pan African Workshop on Newborn Screening, Rabat, Morocco, June 12-14, 2019

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

In an effort to explore new knowledge and to develop meaningful collaborations for improving child health, the First Pan African Workshop on Newborn Screening was convened in June 2019 in Rabat, Morocco. Participants included an informal network of newborn screening stakeholders from across Africa and global experts in newborn screening and sickle cell disease. Over 150 attendees, representing 20 countries, were present including 11 African countries. The agenda focused on newborn screening rationale, techniques, system development, implementation barriers, ongoing research, and collaborations both globally and across Africa. We provide an overview of the workshop and a description of the newborn screening activities in the 11 African countries represented at the workshop, with a focus on sickle cell disease.

Indexed as

Newborn screeningPan-AfricanPublic healthRabat declarationSickle cell disease

Identifiers

PMID32415570
PMCPMC7295888

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.