Evidence map›Paper›PMID 32412908›Full record

ArticleJMIR mHealth and uHealth2020

Improving a Web-Based Tool to Support Older Adults to Stay Independent at Home: Qualitative Study.

Mirjam Marjolein Garvelink, Titilayo Tatiana Agbadjé, Adriana Freitas, Lysa Bergeron, Thomas Petitjean, Michèle Dugas, Louisa Blair, Patrick Archambault, Noémie Roy, Allyson Jones and 1 more

Open access · goldAbstract read
In one paragraph

Article in JMIR mHealth and uHealth, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
2.5field-weighted citation impact, top 8% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 13 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 5 institutions in 1 country.

Mirjam Marjolein GarvelinkCanada Research Chair in Shared Decision Making and Knowledge Translation, Laval University, Québec, QC, Canada.ORCID 0000-0001-5616-0597
Titilayo Tatiana AgbadjéCanada Research Chair in Shared Decision Making and Knowledge Translation, Laval University, Québec, QC, Canada.ORCID 0000-0002-4363-0585
Adriana FreitasCanada Research Chair in Shared Decision Making and Knowledge Translation, Laval University, Québec, QC, Canada.ORCID 0000-0002-4867-6347
Lysa BergeronCanada Research Chair in Shared Decision Making and Knowledge Translation, Laval University, Québec, QC, Canada.ORCID 0000-0001-6138-865X
Thomas PetitjeanCentre for Digital Media, Simon Fraser University, Vancouver, BC, Canada.ORCID 0000-0003-3191-3593
Michèle DugasCentre de recherche en santé durable (VITAM), Québec, QC, Canada.ORCID 0000-0002-5112-6231
Louisa BlairCanada Research Chair in Shared Decision Making and Knowledge Translation, Laval University, Québec, QC, Canada.ORCID 0000-0003-3875-5292
Patrick ArchambaultCentre de recherche en santé durable (VITAM), Québec, QC, Canada.ORCID 0000-0002-5090-6439
Noémie RoyCanada Research Chair in Shared Decision Making and Knowledge Translation, Laval University, Québec, QC, Canada.ORCID 0000-0001-7101-861X
Allyson JonesDepartment of Physical Therapy, Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, AB, Canada.ORCID 0000-0002-3952-3234
France LégaréCanada Research Chair in Shared Decision Making and Knowledge Translation, Laval University, Québec, QC, Canada.ORCID 0000-0002-2296-6696
Centre Intégré Universitaire de Santé et de Services Sociaux du Saguenay–Lac-Saint-Jean · CAUniversité Laval · CACentre intégré de santé et de services sociaux de Chaudière-Appalaches · CASimon Fraser University · CAUniversity of Alberta · CA

Funding

CIHR
6 · The paper itself

Abstract

backgroundOlder adults desire to stay independent at home for as long as possible. We developed an interactive website to inform older adults and caregivers about ways to achieve this.

objectiveThis study aimed to perform an in-depth exploration among potential end users about how to improve the interactive website to better inform older adults and caregivers about ways to stay independent at home.

methodsTo complement the results of a quantitative survey on the usability and acceptability of the website before implementation, we conducted a qualitative descriptive study. Using multiple recruitment strategies, we recruited a purposeful sample of older adults (aged ≥65 years) and caregivers of older adults struggling to stay independent at home. We conducted face-to-face or telephonic interviews in either English or French. In addition, we collected sociodemographic characteristics, other characteristics of participants (eg, health, digital profile, and perception of retirement homes), and experiences with using the website (factors facilitating the use of the website, barriers to its use, and suggestions for improvement). Interviews were audio recorded, transcribed verbatim, and thematically analyzed by two researchers.

resultsWe recruited 15 participants, including 5 older adults (mean age 75 years, SD 6) and 10 caregivers (mean age 57 years, SD 14). The mean interview time was 32 min (SD 14). Most older adults had either mobility or health problems or both, and many of them were receiving home care services (eg, blood pressure measurement and body care). Overall, participants found the website easy to navigate using a computer, reassuring, and useful for obtaining information. Barriers were related to navigation (eg, difficult to navigate with a cellphone), relevance (eg, no specific section for caregivers), realism (eg, some resources presented are not state funded), understandability (eg, the actors' accents were difficult to understand), and accessibility (eg, not adapted for low digital literacy). Suggestions for improvement included a needs assessment section to direct users to the support appropriate to their needs, addition of information about moving into residential care, a section for caregivers, distinction between state-provided and private support services, simpler language, expansion of content to be relevant to all of Canada, and video subtitles for the hearing impaired.

conclusionsUsers provided a wealth of information about the needs of older adults who were facing a loss of autonomy and about what such a website could usefully provide. The request for less generic and more personalized information reflects the wide range of needs that electronic health innovations, such as our interactive website, need to address. After integrating the changes suggested, the new website-Support for Older Adults to Stay Independent at Home (SUSTAIN)-will be implemented and made available to better assist older adults and caregivers in staying independent at home.

Indexed as

CaregiversHome Care ServicesIndependent LivingAgedCanadaHumansInternetMiddle AgedQualitative Researchcaregiversdecision makingfrail elderlyhousing for the elderlyinternet-based interventionpersonal autonomy

Identifiers

PMID32412908
PMCPMC7407259
OpenAlexW3024863892

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.